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Education And Support Programs For Caregivers

Author : Ronald W. Toseland
ISBN : 1441980318
Genre : Psychology
File Size : 22. 47 MB
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For many, caring for a chronically ill family member is “the right thing to do”, but it is also often a source of emotional hardship, physical stress, and social isolation. In response, skill-building, coping, and psychoeducational programs have emerged to help caregivers meet the changes and challenges in their – as well as the patients’ – lives. Education and Support Programs for Caregivers reveals the diversity of the caregiver population as well as their experiences and needs, and it introduces an empirically solid framework for planning, implementing, and evaluating caregiver programs. The book synthesizes current trends, exploring the effectiveness of different types of programs (e.g., clinic, community, home based) and groups (e.g., peer, professional, self-help), and how supportive programs lead to improved care. Coverage includes: Improving service delivery of education and support programs to underserved caregivers. Cultural, ethnic, and gender issues in conducting caregiver education and support groups. Utilization patterns (e.g., a key to understanding service needs). E-health, telehealth, and other technological developments in caregiver services. Evaluating the effectiveness and sustainability of programs. Recommendations for future practice, training, policy, and advocacy. Education and Support Programs for Caregivers offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.

Multiple Dimensions Of Caregiving And Disability

Author : Ronda C. Talley
ISBN : 9781461433842
Genre : Psychology
File Size : 33. 17 MB
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Caring for people with disabilities often becomes an all-encompassing responsibility for one or more family members. To manage the multifaceted demands, caregivers must possess strong multitasking skills, including the ability to assist with daily life tasks; provide emotional support; help with financial affairs; mediate and advocate with health care providers. Maintaining balance within their own lives can become incredibly challenging for caregivers. More often than not, providing care for family members or loved ones occurs at the expense of the caregivers’ well-being. And for caregivers who themselves have disabilities, it further complicates matters. Multiple Dimensions of Caregiving and Disability addresses concerns that have been long familiar to the caregiver population and examines the current state of family care for individuals with disabilities. With a lifespan perspective, this concise reference reviews the literature on specific problems of caregivers and explores which care strategies are effective, promising, or lacking in available resources and support interventions. Contributors also explore the more fluid and subjective aspects of caregiving, such as feelings, spirituality, and family roles. Suggestions for future policy improvements, particularly within the public health sector, are discussed as well. Topics covered include: • Family dynamics and caregiving for people with disabilities. • Parent caregiving of children with disabilities. • Race, ethnicity, socioeconomic status, and caregiving. • Educational, training, and support programs for caregivers. • Emerging technologies to aid caregivers. • Developing partnerships between caregivers and health care providers. Multiple Dimensions of Caregiving and Disability is a must-have resource for researchers, scientist-practitioners, policy makers, and graduate students across such disciplines as clinical psychology, nursing, social work, public health, medicine, and social and education policy.

Rural Caregiving In The United States

Author : Ronda C. Talley
ISBN : 1461403022
Genre : Psychology
File Size : 39. 42 MB
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Caregivers living in rural areas face daunting obstacles. In addition to the isolation and anxiety that many caregivers across the country experience, rural caregivers must also cope with limited access to uncoordinated resources and severe shortages of trained professionals. Although many research, policy, and practice upgrades have been made in response to caregivers’ general concerns, the specific problems facing the rural caregiver have been less frequently addressed. Focusing on what is known as well as what is needed – and zeroing in on major subgroups within this diverse population – Rural Caregiving in the United States replaces misconceptions of the nonurban experience with real-life issues, findings, and solutions. For example, this pioneering volume: Covers a broad range of issues unique to rural caregiving, including research, education/training, policy, and practice. Identifies specific needs related to education, training, and support for rural caregivers. Examines both the positive and negative effects of rural living on caregivers as well as patients. Discusses the importance of in-home care in lieu of scarcer forms of for-profit care (e.g., hospitals). Addresses not only discrepancies between rural and urban health care systems but racial and ethnic disparities within rural health care. Explores the advantages of using information technology to address rural health care limitations. Rural Caregiving in the United States offers uniquely knowledgeable perspectives to researchers, practitioners, and graduate students in the caregiving fields, including psychology, social work, nursing, gerontology and geriatrics, medicine, public health, public policy, and educational policy.

Cancer Caregiving In The United States

Author : Ronda C. Talley
ISBN : 9781461431541
Genre : Psychology
File Size : 30. 30 MB
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Despite advances in detection and treatment, cancer remains a source of pain and distress to patients and of complex challenges to the loved ones caring for them. The trend toward shorter hospital stays in particular has increased the physical, psychological, and financial burden on caregivers, often leading to adverse effects on patients. Cancer Caregiving in the United States illuminates these complex concerns with authoritative detail. This wide-ranging volume provides a comprehensive survey of cancer-related issues, including those affecting the care triad (patients-family members- professionals) and quality of care as well as the numerous physical, emotional, and financial challenges that caregivers may need to confront. Sources of caregiver difficulty at each stage of the disease, from diagnosis to end of life, are explored. Each chapter analyzes its topic in terms of practice, research, education, and policy, providing a wealth of literature reviews, assessment and care models, interventions, and recommendations for future study and practice. Coverage includes: Caregiving issues for cancer patients with long-term, short-term, and intermittent needs. Family caregivers as members of the treatment team. The impact of health disparities on caregivers. Cancer care policy and advocacy. End-of-life issues for cancer caregivers. Legal, financial, and ethical issues. Cancer Caregiving in the United States is a core reference for researchers, professionals/scientist-practitioners, and graduate students in such caregiving fields as clinical psychology, social work, nursing, public health and medicine, social policy, and educational policy.

The Challenges Of Mental Health Caregiving

Author : Ronda C. Talley
ISBN : 9781461487913
Genre : Psychology
File Size : 59. 57 MB
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Caring for the ill, disabled, very old, or very young requires a labor-intensive commitment that is not only essential to the well-being of individuals and to society as a whole, but also fraught with physical, financial, and psychological risks. And despite the critical nature of their job, caregivers rarely have avenues of support. The Challenges of Mental Health Caregiving addresses the complexities of the situation with uncommon depth and breadth. Suited to researchers, scientist-practitioners and clinicians, and students seeking a rounded understanding of the field, it examines how caregiving affects the lives, work, and mental health of family and professional caregivers. Chapters explore developmental, cultural, and spiritual contexts of care, addressing ongoing concerns about care in relation to larger health systems and emphasizing the need for care to be viewed as a community, rather than an individual or family experience. Further, the book's conclusion strongly advocates for more effective and efficient uses for available funds and resources while offering workable proposals for service improvements at the policy level. Key areas of coverage: The impact of caregiving on physical and mental health. Integrating mental health and primary care. The promotion of positive mental health outcomes in children and youth. Mid-life concerns and caregiver experience. Loss, grief, bereavement and the implications for mental health caregiving. Policy issues in caregiving and mental health. The Challenges of Mental Health Caregiving is a clear-sighted reference for researchers, clinicians and scientist-practitioners, and graduate students in the caregiving fields, including clinical psychology, social work, public health/medicine, geriatrics/gerontology, public policy, and educational policy.

Families Caring For An Aging America

Author : National Academies of Sciences, Engineering, and Medicine
ISBN : 9780309448093
Genre : Medical
File Size : 82. 18 MB
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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation’s family caregivers provide the lion’s share of long-term care for our older adult population. They are also central to older adults’ access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Caregiving Across The Lifespan

Author : Ronda C. Talley
ISBN : 9781461455530
Genre : Psychology
File Size : 68. 14 MB
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Most scholars do not consider the long-term nature of caregiving, but rather focus on a specific developmental period (e.g., old age) or a specific disability (e.g., cancer). Yet the most important lessons about caregiving may occur at any age, regardless of disabilities or other limitations. Caregiving is a lifelong process. It begins in a mother’s womb, continues throughout the lifespan, and ends after death. Caregiving Across the Lifespan emphasizes caregiving as a process that occurs throughout one’s life. It discusses infant care, the developmental needs of children and adolescents, the many caregiving issues in adulthood and mid-life, and finally end-of-life care and bereavement. Key coverage includes: Examining caregiving issues across a developmental perspective. Caregiving from infancy through early childhood through end of life. Mid-life and multigenerational bonds and responsibilities. Caregiver identity in older adults. Family caregiving at the end of life. This must-have volume offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.

Family Caregiving In The New Normal

Author : Joseph Gaugler
ISBN : 9780124171299
Genre : Medical
File Size : 68. 75 MB
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Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models Examines how existing efficacious models can more effectively reach and serve individual families

Caregiving For Alzheimer S Disease And Related Disorders

Author : Steven H. Zarit
ISBN : 9781461453352
Genre : Psychology
File Size : 71. 55 MB
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Assisting someone with Alzheimer’s disease or another illness that causes dementia is incredibly demanding and stressful for the family. Like many disabling conditions, Alzheimer’s disease leads to difficulty or inability to carry out common activities of daily life, and so family members take over a variety of tasks ranging from managing the person’s finances to helping with intimate activities such as bathing and dressing. Key coverage in Caregiving for Alzheimer’s Disease and Related Disorders includes: Early diagnosis and family dynamics Emotional needs of caregivers Developmentally appropriate long-term care for people with Alzheimer’s Family caregivers as members of the Alzheimer’s treatment Team Legal and ethical issues for caregivers Faith and spirituality The economics of caring for individuals with Alzheimer’s disease Cultural, racial, ethnic, and socioeconomic issues of minority caregivers Advances in Alzheimer’s disease research Caregiving for Alzheimer’s Disease and Related Disorders offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.

Resilient Grandparent Caregivers

Author : Bert Hayslip
ISBN : 9780415897549
Genre : Family & Relationships
File Size : 83. 73 MB
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The study of grandparents raising grandchildren, now almost two decades old, has tended to have a negative bias, emphasizing the difficulties such people face and the negative impact that grandparent caregiving has on them physically, socially, and emotionally. This edited book seeks to reverse this trend by taking a positive approach to understanding grandparent caregivers, focusing on their resilience and resourcefulness. This method reflects a strengths-based approach and the importance of benefit-finding and positive coping. Chapters feature information from both qualitative and quantitative studies and are written by a diverse range of professionals, such as counselors, psychologists, geriatric social workers, and nurse practitioners, to provide multidisciplinary persepctives for practitioners working with grandparent caregivers. Part one discusses the positive qualities that custodial grandparents possess – resilience, resourcefulness, and benefit finding. The second part considers the sociocultural aspects of resilience and resourcefulness in grandparent caregivers. Finally, part three presents strengths-based interventions for working with custodial grandparents. Practitioners will find this to be a valuable resource in their work and the field as a whole, stimulating positive changes in attitudes toward and practices with grandparent caregivers.

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