genetic privacy a challenge to medico legal norms

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Genetic Privacy

Author : Graeme Laurie
ISBN : 1139431536
Genre : Law
File Size : 60. 97 MB
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The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a unique definition of privacy, including a concept of property rights in the person, and argues for stronger legal protection of privacy in the shadow of developments in human genetics. He challenges the role and the limits of established principles in medical law and ethics, including respect for patient autonomy and confidentiality. This book will interest lawyers, philosophers and doctors concerned both with genetic information and issues of privacy; it will also interest genetic counsellors, researchers, and policy makers worldwide for its practical stance on dilemmas in modern genetic medicine.

Genetics Disability And The Law

Author : Aisling de Paor
ISBN : 9781108509275
Genre : Law
File Size : 37. 14 MB
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While advances in science and technology bring many advantages, we must not ignore the harm that they can cause. Rapid changes in genetic testing are a prime example, and indicators can now help to detect, address and treat diseases. However, in this new study, Aisling de Paor examines how genetic testing is also being used for non-medical reasons, for example for work opportunities and insurance coverage. Genetics, Disability and the Law is the first book of its kind to substantively consider an EU-level response to the use of genetic information. de Paor discusses how to help genetic and scientific research to evolve and grow, how to enhance public confidence in research, and how to control it so that it recognises our values and fundamental human rights. An understudied but vitally important topic, de Paor's work provides a valuable and timely contribution to the field of disability rights.

Humaniora Medizin Recht Geschichte

Author : Bernd-Rüdiger Kern
ISBN : 9783540285144
Genre : Science
File Size : 65. 14 MB
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Die Festschrift für den Nestor des deutschen Arztrechts spiegelt das gesamte Medizinrecht, die deutsche und europäische Rechtsgeschichte und das bürgerliche Recht. Die Autoren entwickeln eine rechtshistorische und geltendrechtliche Dogmen- und Methodenvielfalt, die die jeweilige Forschungsrichtung am Beginn des 21. Jahrhunderts präsentiert und zeigen besonders das Medizinrecht in der Gestalt, zu der Adolf Laufs es als Lehrer und Forscher geformt hat.

The Ethics And Governance Of Human Genetic Databases

Author : Matti Häyry
ISBN : 9781139464048
Genre : Law
File Size : 84. 36 MB
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The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.

Privacy A Very Short Introduction

Author : Raymond Wacks
ISBN : 9780191038808
Genre : Political Science
File Size : 46. 47 MB
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Some would argue that scarcely a day passes without a new assault on our privacy. In the wake of the whistle-blower Edward Snowden's revelations about the extent of surveillance conducted by the security services in the United States, Britain, and elsewhere, concerns about individual privacy have significantly increased. The Internet generates risks, unimagined even twenty years ago, to the security and integrity of information in all its forms. The manner in which information is collected, stored, exchanged, and used has changed forever; and with it, the character of the threats to individual privacy. The scale of accessible private data generated by the phenomenal growth of blogs, social media, and other contrivances of our information age pose disturbing threats to our privacy. And the hunger for gossip continues to fuel sensationalist media that frequently degrade the notion of a private domain to which we reasonably lay claim. In the new edition of this Very Short Introduction, Raymond Wacks looks at all aspects of privacy to include numerous recent changes, and considers how this fundamental value might be reconciled with competing interests such as security and freedom of expression. ABOUT THE SERIES: The Very Short Introductions series from Oxford University Press contains hundreds of titles in almost every subject area. These pocket-sized books are the perfect way to get ahead in a new subject quickly. Our expert authors combine facts, analysis, perspective, new ideas, and enthusiasm to make interesting and challenging topics highly readable.

The Record Of The Association Of The Bar Of The City Of New York

Author : Association of the Bar of the City of New York
ISBN : STANFORD:36105063864172
Genre : Bar associations
File Size : 20. 19 MB
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Scientific American

Author :
ISBN : UCSD:31822036147783
Genre : Science
File Size : 25. 93 MB
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Der Wert Des Privaten

Author : Beate Rössler
ISBN : 3518291300
Genre : Privacy
File Size : 50. 20 MB
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Open Consent

Author : Ants Nõmper
ISBN : 9949110556
Genre : Informed consent (Medical law)
File Size : 71. 90 MB
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The Irish Jurist

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ISBN : STANFORD:36105063249564
Genre : Law
File Size : 23. 70 MB
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