in a different key the story of autism

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In A Different Key

Author : John Donvan
ISBN : 9780307985682
Genre : Psychology
File Size : 86. 17 MB
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Finalist for the 2017 Pulitzer Prize in General Nonfiction An extraordinary narrative history of autism: the riveting story of parents fighting for their children ’s civil rights; of doctors struggling to define autism; of ingenuity, self-advocacy, and profound social change Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.

In A Different Key

Author : John Donvan
ISBN : 9780141973456
Genre : Psychology
File Size : 25. 48 MB
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The stunning history of autism as it has been discovered and felt by parents, children and doctors Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi became the first child diagnosed with autism. In a Different Key tells the extraordinary story of the world his diagnosis created - a riveting human drama that takes us across continents and through some of the great social movements of the twentieth century. The history of autism is, above all, the story of families fighting for a place in the world for their children. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed "refrigerator mothers" for causing autism, of fathers who pushed scientists to dig harder for treatments, of parents who forced schools to accept their children. But many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism, scientists who sparred over how to treat autism, and those with autism, like Temple Grandin and Ari Ne'eman, who explained their inner worlds and championed a philosophy of 'neurodiversity'. This is also a story of fierce controversy: from the question of whether there is truly an autism 'epidemic', and whether vaccines played a part in it, to scandals involving 'facilitated communication', one of many treatments that have proved to be blind alleys. And there are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal, for the first time, that Hans Asperger, discoverer of the syndrome named after him, may have cooperated with the Nazis in sending disabled children to their deaths. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions, to one in which parents and people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.

In A Different Key

Author : John Donvan
ISBN : 9780307985705
Genre : Psychology
File Size : 30. 93 MB
Format : PDF, ePub
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"Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi became the first child diagnosed with autism. Beginning with his family's odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism--by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting "refrigerator mothers" for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families' battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne'eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies--from the question of whether there is truly an autism "epidemic," and whether vaccines played a part in it; to scandals involving "facilitated communication," one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability"--

Neurotribes

Author : Steve Silberman
ISBN : 9781925575507
Genre : Medical
File Size : 59. 8 MB
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Winner of the 2015 Samuel Johnson Prize for Non-Fiction Shortlisted for the Wellcome Book Prize A Sunday Times and New York Times bestseller Foreword by Oliver Sacks What is autism: a devastating developmental condition, a lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is all of these things and more - and the future of our society depends on our understanding it. Following on from his groundbreaking article 'The Geek Syndrome', Wired reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years. Going back to the earliest autism research and chronicling the brave and lonely journey of autistic people and their families through the decades, Silberman provides long-sought solutions to the autism puzzle while casting light on the growing movement of 'neurodiversity' and mapping out a path towards a more humane world for people with learning differences.

Uniquely Human

Author : Barry M. Prizant
ISBN : 9781476776255
Genre : Psychology
File Size : 23. 39 MB
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Winner of the Autism Society of America’s Dr. Temple Grandin Award for the Outstanding Literary Work in Autism A groundbreaking book on autism, by one of the world’s leading experts, who portrays autism as a unique way of being human—this is “required reading....Breathtakingly simple and profoundly positive” (Chicago Tribune). Autism therapy typically focuses on ridding individuals of “autistic” symptoms such as difficulties interacting socially, problems in communicating, sensory challenges, and repetitive behavior patterns. Now Dr. Barry M. Prizant offers a new and compelling paradigm: the most successful approaches to autism don’t aim at fixing a person by eliminating symptoms, but rather seeking to understand the individual’s experience and what underlies the behavior. “A must-read for anyone touched by autism... Dr. Prizant’s Uniquely Human is a crucial step in promoting better understanding and a more humane approach” (Associated Press). Instead of classifying “autistic” behaviors as signs of pathology, Dr. Prizant sees them as part of a range of strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it’s better to enhance abilities, build on strengths, and offer supports that will lead to more desirable behavior and a better quality of life. “A remarkable approach to autism....A truly impactful, necessary book” (Kirkus Reviews, starred review), Uniquely Human offers inspiration and practical advice drawn from Dr. Prizant’s four-decade career. It conveys a deep respect for people with autism and their own unique qualities. Filled with humanity and wisdom, Uniquely Human “should reassure parents and caregivers of kids with autism and any other disability that their kids are not broken, but, indeed, special” (Booklist, starred review).

Understanding Autism

Author : Chloe Silverman
ISBN : 9781400840397
Genre : Social Science
File Size : 20. 32 MB
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Autism has attracted a great deal of attention in recent years, thanks to dramatically increasing rates of diagnosis, extensive organizational mobilization, journalistic coverage, biomedical research, and clinical innovation. Understanding Autism, a social history of the expanding diagnostic category of this contested illness, takes a close look at the role of emotion--specifically, of parental love--in the intense and passionate work of biomedical communities investigating autism. Chloe Silverman tracks developments in autism theory and practice over the past half-century and shows how an understanding of autism has been constituted and stabilized through vital efforts of schools, gene banks, professional associations, government committees, parent networks, and treatment conferences. She examines the love and labor of parents, who play a role in developing--in conjunction with medical experts--new forms of treatment and therapy for their children. While biomedical knowledge is dispersed through an emotionally neutral, technical language that separates experts from laypeople, parental advocacy and activism call these distinctions into question. Silverman reveals how parental care has been a constant driver in the volatile field of autism research and treatment, and has served as an inspiration for scientific change. Recognizing the importance of parental knowledge and observations in treating autism, this book reveals that effective responses to the disorder demonstrate the mutual interdependence of love and science.

A History Of Autism

Author : Adam Feinstein
ISBN : 9781444351675
Genre : Psychology
File Size : 49. 94 MB
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This unique book is the first to fully explore the history of autism - from the first descriptions of autistic-type behaviour to the present day. Features in-depth discussions with leading professionals and pioneers to provide an unprecedented insight into the historical changes in the perception of autism and approaches to it Presents carefully chosen case studies and the latest findings in the field Includes evidence from many previously unpublished documents and illustrations Interviews with parents of autistic children acknowledge the important contribution they have made to a more profound understanding of this enigmatic condition

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