intellectual disability a guide for families and professionals

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Intellectual Disability

Author : James C. Harris, M.D.
ISBN : 019977966X
Genre : Psychology
File Size : 33. 4 MB
Format : PDF, ePub
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Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest. Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.

Understanding Fragile X Syndrome

Author : Isabel Fernández Carvajal
ISBN : 0857004379
Genre : Health & Fitness
File Size : 47. 29 MB
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Fragile X syndrome is one of the main causes of child developmental delay and autism spectrum disorders. A premutated form of the same gene is also the basis for neurological disabilities in adults. This book breaks down the complex science of this genetic disorder and provides the facts and advice that every bewildered parent or professional needs to support individuals with Fragile X syndrome. This handbook offers a straightforward introduction that clearly explains the condition on both a scientific and practical level. With sections on diagnosis, symptoms and treatment, as well as discussions of various emotional and behavioral considerations, the book covers all aspects Fragile X syndrome, its implications, and the possibilities open to families affected by it. The book demonstrates how with the right therapies progress can be made and emphasizes how music can be used effectively to promote communication, interaction, fine motor skills and responsiveness in children with the condition. This is an essential reference tool for families of individuals with Fragile X syndrome, as well as therapists and healthcare professionals who are unfamiliar with the condition and looking to find out more.

Intellectual Disabilities And Dementia

Author : Karen Watchman
ISBN : 9781784501846
Genre : Family & Relationships
File Size : 75. 11 MB
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Drawing on the author's first-hand experiences with families, this book provides crucial, accessible information and answers the difficult questions that often arise when a family member with an intellectual disability is diagnosed with dementia. Linking directly to policy and practice in both dementia and intellectual disability care, this book takes an outcome-focussed approach to support short, medium and long-term planning. With a particular emphasis on communication, the author seeks to ensure that families and organisations are able to converse effectively about a relative's health and care. The book looks at how to recognise when changes in the health of a relative with an intellectual disability could indicate the onset of dementia, as well as addressing common concerns surrounding living situations, medication and care plans. Each chapter is structured to identify strategies for support whilst working towards outcomes identified by families as dementia progresses.

How To Break Bad News To People With Intellectual Disabilities

Author : Irene Tuffrey-Wijne
ISBN : 9780857005830
Genre : Social Science
File Size : 28. 14 MB
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This book offers unique and flexible guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. The guidelines, which are adaptable to individual communication ability and level of understanding, address the many complex needs of people with intellectual disabilities who can find understanding and accepting news that has a negative impact on their life a very difficult task. In the book, Irene Tuffrey-Wijne covers a range of different types of bad news, from bereavement and illness to more minor issues such as a change of accommodation, and offers highly practical and effective tips that will help carers and practitioners ensure that bad news is relayed as sensitively and successfully as possible. An easy-to-use and comprehensive guide, this book will be an invaluable resource of information for carers, health professionals such as doctors and nurses as well as families of people with intellectual disabilities.

Ageing With A Lifelong Disability

Author : Christine Bigby
ISBN : 9781843100775
Genre : Family & Relationships
File Size : 20. 39 MB
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This guide provides specialist knowledge about ageing with a disability in the context of the more mainstream knowledge about ageing processes. Dr Bigby uses the concept of 'successful ageing' as a framework in which to consider the issues and practicalities for older people with a pre-existing disability.

User S Guide Intellectual Disability

Author : Robert L. Schalock
ISBN : 1937604012
Genre : Medical
File Size : 39. 72 MB
Format : PDF, Kindle
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"This edition of the User's guide accompanies the 11th edition of the AAIDD manual: intellectual disability: definition, classification, and systems of supports."

Attachment In Intellectual And Developmental Disability

Author : Helen K. Fletcher
ISBN : 9781118938034
Genre : Psychology
File Size : 74. 57 MB
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Machine generated contents note: Notes on Contributors Foreword (TBD) Acknowledgements 1. Introduction Dougal Julian Hare, Helen K. Fletcher and Andrea Flood 2. An overview of attachment theory: Bowlby and beyond Helen K. Fletcher and Deanna J. Gallichan 3. Attachment relationships between parents and their children: The impact of 'the loss of the healthy child' Helen K. Fletcher 4. Assessing attachment relationships in people with intellectual disabilities Samantha Walker, Victoria Penketh, Hazel Cooper and Dougal Julian Hare 5. Autism Spectrum Disorder and attachment: A clinician's perspective Ewan Perry and Andrea Flood 6. Maintaining the bond: Working with people who are described as showing challenging behaviour using a framework based on attachment theory Allan Skelly 7. Psychotherapy and attachment dynamics in people with intellectual disabilities: A personal view Pat Frankish 8. Adult attachment and care staff functioning Carlo Schuengel , Jennifer Clegg , J. Clasien de Schipper and Sabina Kef 9. Have a heart: Helping services to provide emotionally aware support Amanda Shackleton 10. Attachment trauma and pathological mourning in adults with intellectual disabilities Deanna J. Gallichan and Carol George 11. Attachment, personality disorder and offending: Clinical implications Lesley Steptoe, William R. Lindsay, Caroline Finlay and Sandra Miller 12. Getting Intimate: Using attachment theory to understand intimate relationships in our work with people with intellectual disabilities Nancy Sheppard and Myooran Canagaratnam Index

Moving Out

Author : Dafna Krouk-Gordon
ISBN : 1606130218
Genre : Education
File Size : 34. 17 MB
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Mothers and fathers of children with special needs often report that "Letting go was the hardest thing I ever did". But finding the right residential situation for an adult son or daughter with an intellectual disability does not have to be overwhelming. In this one-stop, practical guide, authors Krouk-Gordon and Jackins share decades of combined experience counselling families on housing options and preparing themselves and their children for a new living arrangement. Though there is no "one-size fits all" solution to housing, this book presents many of the universal questions and considerations most families should face. The authors' step-by-step strategies allow parents to begin to deal with important issues before they actually have to put plans in place. Key topics include: Importance of planning early; Residential models; IY or hire an agency?; Costs & funding of different options; Hiring staff; Group living issues; Legal ownership. This authoritative and empathetic guide goes a long way to easing families anxieties about the entire process of residential planning, as well as monitoring an adult childs well-being once she has moved out. Parents (and professionals) can use this guide (including dozens of checklists and forms) to make educated, strategic decisions and realise the housing situation thats best for their child and family.

Planning And Support For People With Intellectual Disabilities

Author : Chris Fyffe
ISBN : 1846426170
Genre : Social Science
File Size : 55. 76 MB
Format : PDF
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'Thought-provoking, well-written, and offering a range of fresh and sometimes challenging perspectives, Planning and Support should be essential reading for people working in the field of learning disabilities. Highly recommended.' - Involve Magazine The authors outline the skills needed and common issues in case management practice across a range of people with different disabilities at different stages of their life. Emphasising the importance of taking a rights-based approach to supporting people with learning disabilities, the authors argue that effective case management needs to be individualised and carried out in partnership with the individual and their family in order to draw up a lifestyle plan that meets their many needs, including employment, education, vocational training, therapy and behaviour support. The book includes chapters on inter-agency and cross-sector negotiation and collaboration, balancing rights and protection, listening to individuals and families, communication, optimising health outcomes, approaches to behaviour support, ethical decision-making and reflective supervision, and the text is complemented by case studies throughout. An essential reference for practitioners, the book is also an invaluable guide for policy makers, researchers and students, nurses, carers, and people with intellectual disabilities and their families.

Caring For Children With Special Healthcare Needs And Their Families

Author : Linda L. Eddy
ISBN : 9781118517970
Genre : Medical
File Size : 75. 17 MB
Format : PDF
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Caring for Children with Special Healthcare Needs and Their Families: A Handbook for Healthcare Professionals provides a guide for addressing the challenges of providing optimal general and routine care for the special needs population. More than just caring for the patients, the text stresses the importance of caring for their families as well. The book begins with chapters on common aspects of this population, including physical or sensory disabilities and developmental and learning disabilities. Subsequent chapters expound on more specific topics related to communication, mobility, emotional issues, quality of life, and end-of-life. Caring for Children with Special Healthcare Needs and Their Families is a must-have book for family and pediatric nurse practitioners, registered nurses, healthcare technicians, physician assistants and social services professionals who see these patients regularly as part of their daily patient load.

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