intellectual disability a guide for families and professionals

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Intellectual Disability

Author : James C. Harris, M.D.
ISBN : 019977966X
Genre : Psychology
File Size : 78. 8 MB
Format : PDF
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Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest. Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.

Life Planning For Adults With Developmental Disabilities

Author : Judith Greenbaum
ISBN : 9781572244511
Genre : Family & Relationships
File Size : 66. 83 MB
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A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individuals is scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies

Understanding Fragile X Syndrome

Author : Isabel Fernández Carvajal
ISBN : 0857004379
Genre : Health & Fitness
File Size : 29. 52 MB
Format : PDF
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Fragile X syndrome is one of the main causes of child developmental delay and autism spectrum disorders. A premutated form of the same gene is also the basis for neurological disabilities in adults. This book breaks down the complex science of this genetic disorder and provides the facts and advice that every bewildered parent or professional needs to support individuals with Fragile X syndrome. This handbook offers a straightforward introduction that clearly explains the condition on both a scientific and practical level. With sections on diagnosis, symptoms and treatment, as well as discussions of various emotional and behavioral considerations, the book covers all aspects Fragile X syndrome, its implications, and the possibilities open to families affected by it. The book demonstrates how with the right therapies progress can be made and emphasizes how music can be used effectively to promote communication, interaction, fine motor skills and responsiveness in children with the condition. This is an essential reference tool for families of individuals with Fragile X syndrome, as well as therapists and healthcare professionals who are unfamiliar with the condition and looking to find out more.

A Comprehensive Guide To Intellectual And Developmental Disabilities Second Edition

Author : Michael L. Wehmeyer
ISBN : 159857602X
Genre :
File Size : 35. 60 MB
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The trusted core disability textbook gets a comprehensive update in this second edition, now thoroughly revised to include all the critical topics today's professionals need to know about as they work with people who have disabilities. Brought to you by a new team of world-renowned experts and contributors, this volume fully prepares future educators, social workers, researchers, and clinicians to provide the best services and supports to children and adults across the life span. Tomorrow's professionals will discover what to do and how to do it as they prepare for their important work, and they'll refer to this user-friendly compendium year after year for information, insights, and answers. A cornerstone text for any course focused on developmental disabilities and an essential reference for every in-service professional's library. THE IDEAL CORE TEXT FOR DEVELOPMENTAL DISABILITY COURSES: Broad and deep, with thorough, up-to-date information on intervention, education, family roles, health issues, specific disabilities, and much moreLife-span-focused, with topics ranging from genetics and development to aging issues Multidisciplinary, blending research and personal experiences of more than 70 esteemed authors from diverse fieldsImmediately applicable, presenting both the facts and practical, real-world advice on meeting the individual needs of people with disabilities Student-friendly, with learning objectives, instructive case stories, stimulating questions for reflection, and key Internet resources WHATa S NEW: New co-editors and contributors * New and extensively updated chapters on critical topics, including AAC and technology, autism spectrum disorder, advocacy and self-advocacy, communication challenges, family issues, human development and genetics, legal and ethical considerations, and psychopharmacology SELECTED TOPICS COVERED: assessment and diagnosis * behavior and mental health * brain plasticity * cerebral palsy * decision-making and consent * direct support professionals * Down syndrome * early development and intervention * education * employment * epilepsy * fetal alcohol spectrum disorder * fragile X syndrome * gender issues in developmental disabilities * international human rights * nutritional considerations * parenting * physical health * service systems and approaches * transition from school to adult life "

Sexuality And Intellectual Disabilities

Author : Andrew Triska
ISBN : 9781315316383
Genre : Social Science
File Size : 25. 85 MB
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This book provides a concise overview of sexuality and gender identity in clients with intellectual disabilities for therapists, social workers, educators, and healthcare providers. It captures the social, political, and legal environment of the late 2010s and bridges the gap between research and practice, with engaging case examples drawn from the author’s own practice. Guidance on everyday issues like dating and sex education is juxtaposed with material on complex, current issues in topics like LGBTQ inclusion and sexual offending. User-friendly "toolboxes" provide brief guides to practical issues like using trans-friendly language and providing family interventions. Accessible enough for students and trainees, but thorough enough for veteran clinicians, this book explores issues that professionals face in providing competent care through the lens of justice and inclusion.

Handbook Of Developmental Disabilities

Author : Samuel L. Odom
ISBN : 9781606232484
Genre : Psychology
File Size : 38. 97 MB
Format : PDF, Kindle
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This authoritative handbook reviews the breadth of current knowledge about developmental disabilities: neuroscientific and genetic foundations; the impact on health, learning, and behavior; and effective educational and clinical practices. Leading authorities analyze what works in intervening with diverse children and families, from infancy through the school years and the transition to adulthood. Chapters present established and emerging approaches to promoting communication and language abilities, academic skills, positive social relationships, and vocational and independent living skills. Current practices in positive behavior support are discussed, as are strategies for supporting family adaptation and resilience.

What To Do About Smearing

Author : Kate E. Reynolds
ISBN : 9781784503956
Genre : Family & Relationships
File Size : 36. 49 MB
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Addressing the often hidden, yet not uncommon, behaviour of faecal smearing among children and adults with autism and developmental and intellectual disabilities, this practical handbook shows how to tackle this often embarrassing and difficult issue in a positive way. Informing parents and caregivers of the many causes of smearing, the author offers tried-and-tested, everyday approaches for managing this behaviour. This supportive guidebook includes down-to-earth advice, helpful picture narratives, examples of how to prepare and use diary sheets for behaviour analysis, and practical exercises that can be carried out at home. There is also advice on what to do if a child ingests faeces, and dealing with persistent or recurring smearing. With a focus on positive low-arousal responses and featuring the voices of parents who have experience of their child's smearing, families will feel supported and confident in identifying the causes of smearing, and be able to choose and carry out appropriate preventative approaches. This will also be a useful resource for professionals who encounter smearing behaviour, including social workers and SEN and teaching staff.

Dubious Conceptions

Author : Kristin Luker
ISBN : 0674217039
Genre : Health & Fitness
File Size : 41. 38 MB
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Argues that the social and economic forces that discourage better-off women to delay childbirth are the same forces that push disadvantaged women to early pregnancy

When Young People With Intellectual Disabilities And Autism Hit Puberty

Author : Freddy Jackson Brown
ISBN : 9781784502164
Genre : Family & Relationships
File Size : 36. 23 MB
Format : PDF, ePub, Docs
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Puberty, personal hygiene and sex can be difficult topics to broach with your child, especially when they have an intellectual disability or autism. The authors of this guide provide honest answers to challenging questions and provide solutions to the dilemmas that many parents face on a daily basis. Structured around issues related to puberty and emerging sexuality in children with disabilities or autism, such as physical changes, mood swings and sexual behaviour, the book presents case studies alongside practical guidance on how to overcome problems that commonly arise. The book also explains laws relevant to disability and sexuality and suggests appropriate sex education programmes to meet the needs of differing degrees of disability.

Attachment In Intellectual And Developmental Disability

Author : Helen K. Fletcher
ISBN : 9781118938034
Genre : Psychology
File Size : 65. 88 MB
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Machine generated contents note: Notes on Contributors Foreword (TBD) Acknowledgements 1. Introduction Dougal Julian Hare, Helen K. Fletcher and Andrea Flood 2. An overview of attachment theory: Bowlby and beyond Helen K. Fletcher and Deanna J. Gallichan 3. Attachment relationships between parents and their children: The impact of 'the loss of the healthy child' Helen K. Fletcher 4. Assessing attachment relationships in people with intellectual disabilities Samantha Walker, Victoria Penketh, Hazel Cooper and Dougal Julian Hare 5. Autism Spectrum Disorder and attachment: A clinician's perspective Ewan Perry and Andrea Flood 6. Maintaining the bond: Working with people who are described as showing challenging behaviour using a framework based on attachment theory Allan Skelly 7. Psychotherapy and attachment dynamics in people with intellectual disabilities: A personal view Pat Frankish 8. Adult attachment and care staff functioning Carlo Schuengel , Jennifer Clegg , J. Clasien de Schipper and Sabina Kef 9. Have a heart: Helping services to provide emotionally aware support Amanda Shackleton 10. Attachment trauma and pathological mourning in adults with intellectual disabilities Deanna J. Gallichan and Carol George 11. Attachment, personality disorder and offending: Clinical implications Lesley Steptoe, William R. Lindsay, Caroline Finlay and Sandra Miller 12. Getting Intimate: Using attachment theory to understand intimate relationships in our work with people with intellectual disabilities Nancy Sheppard and Myooran Canagaratnam Index

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