intellectual disability a guide for families and professionals

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Intellectual Disability

Author : James C. Harris, M.D.
ISBN : 019977966X
Genre : Psychology
File Size : 45. 36 MB
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Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest. Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.

Intellectual Disability

Author : James C. Harris
ISBN : 9780195145724
Genre : Family & Relationships
File Size : 75. 48 MB
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Intellectual Disability is a comprehensive resource that will be of use to anyone with a personal connection to a child with a developmental disorder. The book offers parents, teachers, and other adults information on assessment, diagnosis, and treatment of a range of disorders, as well as on some of the accompanying mental and physical health issues that can accompany certain disorders. Emphasis is placed on advocacy and how individuals with intellectual disability can meaningfully participate in their families and communities.

Understanding Fragile X Syndrome

Author : Isabel Fernández Carvajal
ISBN : 0857004379
Genre : Health & Fitness
File Size : 42. 30 MB
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Fragile X syndrome is one of the main causes of child developmental delay and autism spectrum disorders. A premutated form of the same gene is also the basis for neurological disabilities in adults. This book breaks down the complex science of this genetic disorder and provides the facts and advice that every bewildered parent or professional needs to support individuals with Fragile X syndrome. This handbook offers a straightforward introduction that clearly explains the condition on both a scientific and practical level. With sections on diagnosis, symptoms and treatment, as well as discussions of various emotional and behavioral considerations, the book covers all aspects Fragile X syndrome, its implications, and the possibilities open to families affected by it. The book demonstrates how with the right therapies progress can be made and emphasizes how music can be used effectively to promote communication, interaction, fine motor skills and responsiveness in children with the condition. This is an essential reference tool for families of individuals with Fragile X syndrome, as well as therapists and healthcare professionals who are unfamiliar with the condition and looking to find out more.

Ageing With A Lifelong Disability

Author : Christine Bigby
ISBN : 9781843100775
Genre : Family & Relationships
File Size : 55. 46 MB
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This guide provides specialist knowledge about ageing with a disability in the context of the more mainstream knowledge about ageing processes. Dr Bigby uses the concept of 'successful ageing' as a framework in which to consider the issues and practicalities for older people with a pre-existing disability.

The Practical Guide To The Genetic Family History

Author : Robin L. Bennett
ISBN : 9781118209813
Genre : Medical
File Size : 37. 46 MB
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Helps you develop and assess pedigrees to make diagnoses, evaluate risk, and counsel patients The Second Edition of The Practical Guide to the Genetic Family History not only shows how to take a medical-family history and record a pedigree, but also explains why each bit of information gathered is important. It provides essential support in diagnosing conditions with a genetic component. Moreover, it aids in recommending genetic testing, referring patients for genetic counseling, determining patterns of inheritance, calculating risk of disease, making decisions for medical management and surveillance, and informing and educating patients. Based on the author's twenty-five years as a genetic counselor, the book also helps readers deal with the psychological, social, cultural, and ethical problems that arise in gathering a medical-family history and sharing findings with patients. Featuring a new Foreword by Arno Motulsky, widely recognized as the founder of medical genetics, and completely updated to reflect the most recent findings in genetic medicine, this Second Edition presents the latest information and methods for preparing and assessing a pedigree, including: Value and utility of a thorough medical-family history Directed questions to ask when developing a medical-family history for specific disease conditions Use of pedigrees to identify individuals with an increased susceptibility to cancer Verification of family medical information Special considerations when adoptions or gamete donors are involved Ethical issues that may arise in recording a pedigree Throughout the book, clinical examples based on hypothetical families illustrate key concepts, helping readers understand how real issues present themselves and how they can be resolved. This book will enable all healthcare providers, including physicians, nurses, medical social workers, and physician assistants, as well as genetic counselors, to take full advantage of the pedigree as a primary tool for making a genetic risk assessment and providing counseling for patients and their families.

Life Planning For Adults With Developmental Disabilities

Author : Judith Greenbaum
ISBN : 9781572244511
Genre : Family & Relationships
File Size : 78. 82 MB
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A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individuals is scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies

Attachment In Intellectual And Developmental Disability

Author : Helen K. Fletcher
ISBN : 9781118938065
Genre : Psychology
File Size : 28. 30 MB
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Attachment in Intellectual and Developmental Disability: A Clinician’s Guide to Practice and Research is the first book to explore the clinical difficulties associated with attachment relationships in people with intellectual and developmental disabilities. Draws together knowledge from disparate sources in a definitive new resource for clinicians working in this area A growing body of evidence-based approaches in this area are underpinned by attachment theory, including direct intervention and the use of attachment theory to understand interactions and relationships Presents and integrates cutting-edge models and approaches that have previously been available only to specialists Written by mainstream practitioners who are active in clinical work and research; focused on real-world applications, with illustrative case examples throughout

Working With Parents Of A Newly Diagnosed Child With An Autism Spectrum Disorder

Author : SYLVIA RODGER
ISBN : 0857002937
Genre : Psychology
File Size : 39. 70 MB
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Finding out that a child has an autism spectrum disorder (ASD) can put an enormous strain on families, and the quality of support offered by professionals at this time can make a huge difference to how they adjust to the news. This book comprehensively sets out the type of support that is most beneficial to families immediately following an ASD diagnosis, and will equip professionals with the information and tools they need to best provide that support. The authors provide all of the key information professionals supporting families at the time of an ASD diagnosis need to know about the diagnostic criteria of ASD, key characteristics, aetiology, prevalence, and prognosis, and explain how to pass on accurate and meaningful information to families, and how to build effective family-professional partnerships. Drawing on extensive research and interviews with 50 families of children with ASD, they provide strategies for helping families understand the options and make informed choices about early intervention programs, set realistic goals, develop effective parenting strategies that build upon the strengths and capacities of the child, and strengthen family support networks. This is an essential resource for any professional involved in supporting families at the time of, or immediately following, an ASD diagnosis, including psychologists, occupational therapists, speech and language therapists, general medical practitioners, and educators.

E Study Guide For Core Curriculum For Specializing In Intellectual And Developmental Disability A Resource For Nurses And Other Health Care Professionals By Wendy M Nehring Isbn 9780763747657

Author : Cram101 Textbook Reviews
ISBN : 9781467236683
Genre : Education
File Size : 49. 76 MB
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Never Highlight a Book Again! Just the FACTS101 study guides give the student the textbook outlines, highlights, practice quizzes and optional access to the full practice tests for their textbook.

Handbook Of Research Based Practices For Educating Students With Intellectual Disability

Author : Michael L. Wehmeyer
ISBN : 9781317566236
Genre : Education
File Size : 45. 37 MB
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The Handbook of Research-Based Practices for Educating Students with Intellectual Disability provides an integrated, transdisciplinary overview of research-based practices for teaching students with intellectual disability. This comprehensive volume emphasizes education across life stages, from early intervention in schools through the transition to adulthood, and highlights major educational and support needs of children and youth with intellectual disability. The implications of history, recent research, and existing information are positioned to systematically advance new practices and explore promising possibilities in the field. Driven by the collaboration of accomplished, nationally recognized professionals of varied approaches and philosophies, the book emphasizes practices that have been shown to be effective through multiple methodologies, so as to help readers select interventions based on the evidence of their effectiveness.

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