intellectual disability a guide for families and professionals

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Intellectual Disability

Author : James C. Harris, M.D.
ISBN : 019977966X
Genre : Psychology
File Size : 79. 86 MB
Format : PDF
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Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest. Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.

Understanding Fragile X Syndrome

Author : Isabel Fernández Carvajal
ISBN : 0857004379
Genre : Health & Fitness
File Size : 47. 65 MB
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Fragile X syndrome is one of the main causes of child developmental delay and autism spectrum disorders. A premutated form of the same gene is also the basis for neurological disabilities in adults. This book breaks down the complex science of this genetic disorder and provides the facts and advice that every bewildered parent or professional needs to support individuals with Fragile X syndrome. This handbook offers a straightforward introduction that clearly explains the condition on both a scientific and practical level. With sections on diagnosis, symptoms and treatment, as well as discussions of various emotional and behavioral considerations, the book covers all aspects Fragile X syndrome, its implications, and the possibilities open to families affected by it. The book demonstrates how with the right therapies progress can be made and emphasizes how music can be used effectively to promote communication, interaction, fine motor skills and responsiveness in children with the condition. This is an essential reference tool for families of individuals with Fragile X syndrome, as well as therapists and healthcare professionals who are unfamiliar with the condition and looking to find out more.

Guide To Mental Health For Families And Carers Of People With Intellectual Disabilities

Author : Anastasia Gratsa
ISBN : 1846420237
Genre : Psychology
File Size : 54. 13 MB
Format : PDF, Kindle
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A practical and comprehensive introduction for carers to mental health problems, this accessible guide outlines a range of signs and symptoms of mental health problems that can affect people with intellectual disabilities. The guide explains why mental health problems develop, and advises on what can be done to help people with intellectual disabilities and carers themselves. With chapters on specific disabilities such as autism and epilepsy, the authors cover topics such as: * treatment and interventions for mental health problems * getting the best services and understanding policy around mental health and intellectual disabilities * legal issues, for example, what it means to `give consent' * carers' needs and support for carers. Written with advice from carers and people with intellectual disabilities who use mental health services, this book is an essential resource for all those who care for, and with, people with learning disabilities.

Ageing With A Lifelong Disability

Author : Christine Bigby
ISBN : 9781843100775
Genre : Family & Relationships
File Size : 85. 28 MB
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This guide provides specialist knowledge about ageing with a disability in the context of the more mainstream knowledge about ageing processes. Dr Bigby uses the concept of 'successful ageing' as a framework in which to consider the issues and practicalities for older people with a pre-existing disability.

Attachment In Intellectual And Developmental Disability

Author : Helen K. Fletcher
ISBN : 9781118938034
Genre : Psychology
File Size : 86. 1 MB
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Machine generated contents note: Notes on Contributors Foreword (TBD) Acknowledgements 1. Introduction Dougal Julian Hare, Helen K. Fletcher and Andrea Flood 2. An overview of attachment theory: Bowlby and beyond Helen K. Fletcher and Deanna J. Gallichan 3. Attachment relationships between parents and their children: The impact of 'the loss of the healthy child' Helen K. Fletcher 4. Assessing attachment relationships in people with intellectual disabilities Samantha Walker, Victoria Penketh, Hazel Cooper and Dougal Julian Hare 5. Autism Spectrum Disorder and attachment: A clinician's perspective Ewan Perry and Andrea Flood 6. Maintaining the bond: Working with people who are described as showing challenging behaviour using a framework based on attachment theory Allan Skelly 7. Psychotherapy and attachment dynamics in people with intellectual disabilities: A personal view Pat Frankish 8. Adult attachment and care staff functioning Carlo Schuengel , Jennifer Clegg , J. Clasien de Schipper and Sabina Kef 9. Have a heart: Helping services to provide emotionally aware support Amanda Shackleton 10. Attachment trauma and pathological mourning in adults with intellectual disabilities Deanna J. Gallichan and Carol George 11. Attachment, personality disorder and offending: Clinical implications Lesley Steptoe, William R. Lindsay, Caroline Finlay and Sandra Miller 12. Getting Intimate: Using attachment theory to understand intimate relationships in our work with people with intellectual disabilities Nancy Sheppard and Myooran Canagaratnam Index

Life Planning For Adults With Developmental Disabilities

Author : Judith Greenbaum
ISBN : 9781572244511
Genre : Family & Relationships
File Size : 76. 48 MB
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A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individuals is scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies

User S Guide Intellectual Disability

Author : Robert L. Schalock
ISBN : 1937604012
Genre : Medical
File Size : 46. 75 MB
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"This edition of the User's guide accompanies the 11th edition of the AAIDD manual: intellectual disability: definition, classification, and systems of supports."

Planning And Support For People With Intellectual Disabilities

Author : Chris Fyffe
ISBN : 1846426170
Genre : Social Science
File Size : 55. 77 MB
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'Thought-provoking, well-written, and offering a range of fresh and sometimes challenging perspectives, Planning and Support should be essential reading for people working in the field of learning disabilities. Highly recommended.' - Involve Magazine The authors outline the skills needed and common issues in case management practice across a range of people with different disabilities at different stages of their life. Emphasising the importance of taking a rights-based approach to supporting people with learning disabilities, the authors argue that effective case management needs to be individualised and carried out in partnership with the individual and their family in order to draw up a lifestyle plan that meets their many needs, including employment, education, vocational training, therapy and behaviour support. The book includes chapters on inter-agency and cross-sector negotiation and collaboration, balancing rights and protection, listening to individuals and families, communication, optimising health outcomes, approaches to behaviour support, ethical decision-making and reflective supervision, and the text is complemented by case studies throughout. An essential reference for practitioners, the book is also an invaluable guide for policy makers, researchers and students, nurses, carers, and people with intellectual disabilities and their families.

Essentials Of Intellectual Disability Assessment And Identification

Author : Alan W. Brue
ISBN : 9781118875094
Genre : Psychology
File Size : 23. 59 MB
Format : PDF
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"Provides students and professionals with an in-depth look at intellectual disability evaluation and assessment"--

How To Break Bad News To People With Intellectual Disabilities

Author : Irene Tuffrey-Wijne
ISBN : 9781849052801
Genre : Social Science
File Size : 22. 36 MB
Format : PDF, ePub, Docs
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This book offers unique and adaptable guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. It provides effective tips and support that will help social workers, counsellors and caring professionals relay all types of bad news as sensitively and successfully as possible.

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