life after encephalitis a narrative approach after brain injury survivor stories

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Life After Encephalitis

Author : Ava Easton
ISBN : 9781317538387
Genre : Psychology
File Size : 60. 56 MB
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Encephalitis is a devastating condition whose impact upon people should not be underestimated. It robs people of abilities most of us take for granted, it leaves people without their loved ones, and even in those families where the person affected survives the person they once knew can be dramatically changed. Life After Encephalitis provides a unique insight into the experiences of those affected by encephalitis, sharing the rich, perceptive, and often powerful, narratives of survivors and family members. It shows how listening to patient and family narratives can help us to understand how they make sense of what has happened to them, and also help professionals better understand and engage with them in practice. The book will also be useful for considering narratives associated with brain injuries from other causes, for example traumatic brain injury. Life After Encephalitis will appeal to a wide range of professionals working in rehabilitation settings, and also to and survivors of encephalitis, their families, and carers.

Life After Brain Injury

Author : Barbara A. Wilson
ISBN : 9781135941697
Genre : Psychology
File Size : 20. 53 MB
Format : PDF, Kindle
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This is the first book of its kind to include the personal accounts of people who have survived injury to the brain, along with professional therapists' reports of their progress through rehabilitation. The paintings and stories of survivors combine with experts' discussions of the theory and practice of brain injury rehabilitation to illustrate the ups and downs that survivors encounter in their journey from pre-injury status to insult and post-injury rehabilitation. Wilson, Winegardner and Ashworth's focus on the survivors' perspective shows how rehabilitation is an interactive process between people with brain injury, health care staff, and others, and gives the survivors the chance to tell their own stories of life before their injury, the nature of the insult, their early treatment, and subsequent rehabilitation. Presenting practical approaches to help survivors of brain injury achieve functionally relevant and meaningful goals, Life After Brain Injury: Survivors’ Stories will help all those working in rehabilitation understand the principles involved in holistic brain injury rehabilitation and how these principles, combined with theory and models, translate into clinical practice. This book will be of great interest to anyone who wishes to extend their knowledge of the latest theories and practices involved in making life more manageable for people who have suffered damage to the brain. Life After Brain Injury: Survivors’ Stories will also be essential for clinical psychologists, neuropsychologists, and anybody dealing with acquired brain injury whether they be a survivor of a brain injury themselves, a relative, a friend or a carer.

A Different Perspective After Brain Injury

Author : Christopher Yeoh
ISBN : 9781351678148
Genre : Psychology
File Size : 67. 81 MB
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Whilst preparing for his travel adventures into a world he had yet to explore, Christopher Yeoh was involved in a road traffic accident and experienced something few others would be "privileged" to witness. Eight days in a coma, more than a year in and out of hospital and a gradual re-introduction to the world of work. A Different Perspective After Brain Injury: A Tilted Point of View is written entirely by the survivor, providing an unusually introspective and critical personal account of life following a serious blow to the head. It charts the initial insult, early rehabilitation, development of understanding, the return of emotion, moments of triumph and regression into depression, the exercise of reframing how a brain injury is perceived and a return to work. It also describes the mental adjustments of awareness and acceptance alongside the physical recovery process. Readily accessible to the general public, this book will also be of particular interest to professionals involved in the care of people who have had significant brain injuries, brain injury survivors, their families and friends and also those who fund and organise health and social care. This unique author account will provide a degree of understanding of what living with a hidden disability is really like.

Brain Wreck

Author : Becky Dennis
ISBN : 0988496100
Genre :
File Size : 60. 35 MB
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At 8,000 miles away from home, a business professional delivers a polished presentation to a group of executives. And within two hours, she forgets how to walk. Talking becomes too strenuous. She is struck by an odd series of neurological deficits that baffle her and a dozen doctors ... for 27 months. Brain Wreck is a must read for anyone who has witnessed the frustration of a mysterious illness. This is a story of determination and an unrelenting journey to save one's mind. With humor and unabashed honesty, the author restores a shattered spirit while striving to be "normal."

Stroke Survivor

Author : Andy McCann
ISBN : 9781846424724
Genre : Medical
File Size : 30. 81 MB
Format : PDF, Docs
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`Having had a stroke aged 37 years, Andy McCann has written this clear, easily readable account of his experiences, showing insight and the value of his learning along his personal journey...This book would be invaluable for any health professional, including technicians and students, with any level of experience, to increase his or her knowledge and awareness of a patient's perspective, and would act as a useful departmental resource. Stroke survivors and carers would also benefit, particularly when needing to participate in a rehabilitation goal setting programme... this book is educational and motivational, and has an excellent practical section which could be an inspirational read for professionals, patients and carers.' -British Journal of Occupational Therapy `Andy says `I hope that reading this book has proved to be an uplifting, interesting and at times educational experience.' It certainly was for me; I read it in 3 days, and at times could not put it down.' - The Acquirer (Acquired Brain Injury Newsletter) `Andy McCann tells his own story of experiencing a sudden stroke at the age of 37. The book is both a personal story and a practical source of advice and information on the topic of stroke. Issues covered range from managing financial security and understanding medical terminology, to coming to terms with a new sense of vulnerability and dealing with the attitudes of friends and family. The book also offers advice on establishing a healthier and more balanced lifestyle in order to prevent strokes.' - Headway News `It is an inspirational, yet offers practical information for anyone concerned with the stroke recovery journey. Andy's personal story is poignant and informative. He presents an informed understanding of the anatomy, physiology and pathophysiology of stroke. The book explains clearly the effects of the stroke and prognosis. There is also a toolkit for recovery, prevention and a useful section on financial matters. It is a great read'. - Nursing Standards `McCann, who was formerly a British physical education teacher until he suffered a cerebellar stroke at the age of 37, outlines the symptoms of brain damage as they relate to stroke in his own experience, and explains the anatomy of the brain and it's blood supply. The final section recommends medicines, physical activities, and nutrition for recovery and prevention' - Book News `This is more than a persona guide to recovery after a stroke and more than a book about stroke. It is an extraordinary journey through a part of someone's life by an extraordinary person who not only sees himself as having survived a life changing illness, but someone who has gained from it. This book is a reminder of the fragility of life and all that we take for granted in our everyday lives and defines a way forward for those who find themselves in this, or similar circumstances and for those who want to enhance their knowledge of illness, prevention of illness and recovery...This book should be essential reading for survivors and those close to them, for relevant professionals and for those wanting to extend their knowledge about strokes and other illnesses which impact on an individual's life course'. -Brain Injury Social Work Group (BISWG) * At the age of 37 Andy McCann was physically fit, strong and in good health. Then, mid-way through instructing his weekly martial arts class, he experienced a stroke and was rushed to hospital. Until then, the word `stroke' had meant little to Andy, and in this book he recounts the many difficulties in learning to live with his new situation. Funny, poignant and informative, the book is not just a personal story, but also offers a wealth of advice and information for anyone who wants to know more about strokes. He explores a broad range of issues experienced by stroke survivors, from the very practical considerations of managing financial security and understanding medical approaches and terminology to the more personal challenges of coming to terms with a new sense of vulnerability and dealing with the attitudes of friends and family. The common thread throughout is Andy's insistence that he will not be a `stroke victim' but a `stroke survivor', determined to live with his new set of circumstances in a positive way. This book is a compelling yet practical source of information that will be valued by professionals and patients alike - whether a fellow stroke survivor, a concerned family member or a health or social care professional working with stroke victims.

Brain On Fire My Month Of Madness

Author : Susannah Cahalan
ISBN : 9780141975351
Genre : Biography & Autobiography
File Size : 84. 25 MB
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'My first serious blackout marked the line between sanity and insanity. Though I would have moments of lucidity over the coming days and weeks, I would never again be the same person ...' Susannah Cahalan was a happy, clever, healthy twenty-four-year old. Then one day she woke up in hospital, with no memory of what had happened or how she had got there. Within weeks, she would be transformed into someone unrecognizable, descending into a state of acute psychosis, undergoing rages and convulsions, hallucinating that her father had murdered his wife; that she could control time with her mind. Everything she had taken for granted about her life, and who she was, was wiped out. Brain on Fire is Susannah's story of her terrifying descent into madness and the desperate hunt for a diagnosis, as, after dozens of tests and scans, baffled doctors concluded she should be confined in a psychiatric ward. It is also the story of how one brilliant man, Syria-born Dr Najar, finally proved - using a simple pen and paper - that Susannah's psychotic behaviour was caused by a rare autoimmune disease attacking her brain. His diagnosis of this little-known condition, thought to have been the real cause of devil-possessions through history, saved her life, and possibly the lives of many others. Cahalan takes readers inside this newly-discovered disease through the progress of her own harrowing journey, piecing it together using memories, journals, hospital videos and records. Written with passionate honesty and intelligence, Brain on Fire is a searingly personal yet universal book, which asks what happens when your identity is suddenly destroyed, and how you get it back. 'With eagle-eye precision and brutal honesty, Susannah Cahalan turns her journalistic gaze on herself as she bravely looks back on one of the most harrowing and unimaginable experiences one could ever face: the loss of mind, body and self. Brain on Fire is a mesmerizing story' -Mira Bartók, New York Times bestselling author of The Memory Palace Susannah Cahalan is a reporter on the New York Post, and the recipient of the 2010 Silurian Award of Excellence in Journalism for Feature Writing. Her writing has also appeared in the New York Times, and is frequently picked up by the Daily Mail, Gawker, Gothamist, AOL and Yahoo among other news aggregrator sites.

Surviving Brain Damage After Assault

Author : Barbara A. Wilson
ISBN : 9781317580638
Genre : Psychology
File Size : 28. 48 MB
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At the age of twenty eight Gary was assaulted by a gang with baseball bats and a hammer, resulting in several skull fractures and severe brain damage. For nineteen months he had little awareness of his surroundings before he started to show some recovery. This inspirational book documents his exceptional journey. The book presents a series of interviews with Gary, his mother Wendie, who never gave up, the medical team who initially treated him, and the therapists who worked with him over a period of three years. Through their testimony we learn about the devastating effects which can follow a serious assault to the head, and the long process of recovery over several years. With specialist rehabilitation and continuing family support Gary has exceeded expectations and, apart from some minor physical problems, he is now a normal young man. Surviving Brain Damage after Assault shows that, contrary to popular belief, considerable gains can be made by people who have experienced a long period of reduced consciousness. The book will be of great value to all professionals working in rehabilitation - psychologists, speech and language therapists, occupational therapists, social workers and rehabilitation doctors, and to people who have sustained a brain injury and their families.

Understanding Hashimoto S Encephalopathy

Author : Hashimoto's Encephalopathy Sreat Alliance
ISBN : 1484883098
Genre : Medical
File Size : 26. 45 MB
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Understanding Hashimoto's Encephalopathy is the first book ever published about this rare autoimmune disease. Hashimoto's Encephalopathy ("HE") - often referred to as Steroid Responsive Encephalopathy Associated with Thyroiditis ("SREAT") - strikes people of all ages, in all walks of life, and takes a devastating toll on patients and their loved ones. Nevertheless, the disease is poorly understood, and continues to puzzle physicians and researchers around the globe. As a result, patients with HE often remain undiagnosed for months or even years, if they are lucky enough to be diagnosed at all. Here, readers will learn the symptoms, diagnostic criteria and challenges, and treatment options for HE, as well as a discussion of the scientific theories regarding the causes and diagnostic markers of the disease. For clinicians and others interested in reviewing the latest scientific research, the book contains citations and internet links to over 100 scientific articles about HE/SREAT published between 2010 and 2013. At the heart of the book are first-person narratives from 48 HE patients and caregivers in the US, the UK, Europe, and Australia, which provide a never-before-available glimpse into the debilitating effects of HE as told by those who live with the disease day in and day out. Patients describe their symptoms, their struggle to find a diagnosis, and their treatment experiences. The book includes a separate section devoted to the stories of pediatric HE/SREAT patients, as told by their parents. Understanding Hashimoto's Encephalopathy offers a comprehensive picture of HE/SREAT that is helpful for physicians new to the disease yet told in language accessible to the layman. DISCLAIMER: As with all books, Understanding Hashimoto's Encephalopathy is not intended to be and should not be considered to constitute medical advice.

A Different Perspective After Brain Injury

Author : Christopher Yeoh
ISBN : 9781351678148
Genre : Psychology
File Size : 89. 17 MB
Format : PDF
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Whilst preparing for his travel adventures into a world he had yet to explore, Christopher Yeoh was involved in a road traffic accident and experienced something few others would be "privileged" to witness. Eight days in a coma, more than a year in and out of hospital and a gradual re-introduction to the world of work. A Different Perspective After Brain Injury: A Tilted Point of View is written entirely by the survivor, providing an unusually introspective and critical personal account of life following a serious blow to the head. It charts the initial insult, early rehabilitation, development of understanding, the return of emotion, moments of triumph and regression into depression, the exercise of reframing how a brain injury is perceived and a return to work. It also describes the mental adjustments of awareness and acceptance alongside the physical recovery process. Readily accessible to the general public, this book will also be of particular interest to professionals involved in the care of people who have had significant brain injuries, brain injury survivors, their families and friends and also those who fund and organise health and social care. This unique author account will provide a degree of understanding of what living with a hidden disability is really like.

Head Cases

Author : Michael Paul Mason
ISBN : 1429953748
Genre : Science
File Size : 35. 89 MB
Format : PDF, ePub
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Head Cases takes us into the dark side of the brain in an astonishing sequence of stories, at once true and strange, from the world of brain damage. Michael Paul Mason is one of an elite group of experts who coordinate care in the complicated aftermath of tragic injuries that can last a lifetime. On the road with Mason, we encounter survivors of brain injuries as they struggle to map and make sense of the new worlds they inhabit. Underlying each of these survivors' stories is an exploration of the brain and its mysteries. When injured, the brain must figure out how to heal itself, reorganizing its physiology in order to do the job. Mason gives us a series of vivid glimpses into brain science, the last frontier of medicine, and we come away in awe of the miracles of the brain's workings and astonished at the fragility of the brain and the sense of self, life, and order that resides there. Head Cases "[achieves] through sympathy and curiosity insight like that which pulses through genuine literature" (The New York Sun); it is at once illuminating and deeply affecting.

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