the forever fix gene therapy and the boy who saved it

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The Forever Fix

Author : Ricki Lewis
ISBN : 9780312681906
Genre : Medical
File Size : 38. 40 MB
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A narrative portrait of gene-therapy science explores its potential for reducing reliance on surgery and medication, shares the perspectives of children and families it has directly impacted and discusses what scientists have learned from various cases.

The Forever Fix

Author : Ricki Lewis
ISBN : 9781429941471
Genre : Science
File Size : 59. 11 MB
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Fascinating narrative science that explores the next frontier in medicine and genetics through the very personal prism of the children and families gene therapy has touched. Eight-year-old Corey Haas was nearly blind from a hereditary disorder when his sight was restored through a delicate procedure that made medical history. Like something from a science fiction novel, doctors carefully injected viruses bearing healing genes into the DNA of Corey's eyes—a few days later, Corey could see, his sight restored by gene therapy. THE FOREVER FIX is the first book to tell the fascinating story of gene therapy: how it works, the science behind it, how patients (mostly children) have been helped and harmed, and how scientists learned from each trial to get one step closer to its immense promise, the promise of a "forever fix," - a cure that, by fixing problems at their genetic root, does not need further surgery or medication. Told through the voices of the children and families who have been the inspiration, experimental subjects, and successes of genetic science, THE FOREVER FIX is compelling and engaging narrative science that tells explores the future of medicine as well as the families and scientists who are breaking new ground every day.

Cantor S Dilemma

Author : Carl Djerassi
ISBN : 9780307819086
Genre : Fiction
File Size : 71. 75 MB
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When Professor Isidore Cantor reveals his latest breakthrough in cancer research, his promising research fellow, Dr. Jeremiah Stafford, has only to conduct the experiment and win Cantor the Nobel prize. But how far will Stafford go to guarantee the results? Carl Djerassi draws from his career as a world-famous scientist to describe the fierce competition driving scientific superstars in this gripping novel.

Human Genetics

Author : Ricki Lewis
ISBN : 1259095630
Genre :
File Size : 67. 4 MB
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Today, human genetics is for everyone. It is about variation more than about illnesses, and increasingly about the common rather than about the rare. Once an obscure science or an occasional explanation for an odd collection of symptoms, human genetics is now part of everyday conversation. By coming to know genetic backgrounds, people can control their environments in more healthy ways. Genetic knowledge is, therefore, both informative and empowering. The 10th edition of Human Genetics: Concepts and Applications shows students how and why that is true.

Saving Talk Therapy

Author : Enrico Gnaulati
ISBN : 9780807093405
Genre : Medical
File Size : 41. 48 MB
Format : PDF, Kindle
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"In recent decades there has been a decline in the quality and availability of psychotherapy in America that has gone largely unnoticed—even though rates of anxiety, depression, and suicide are on the rise. In Saving Talk Therapy, master therapist Dr. Enrico Gnaulati presents powerful case studies from his practice to remind patients and therapists alike how and why traditional talk therapy works and, using cutting-edge research findings, unpacks the problematic incentives in our health-care system and in academic psychology that explain its decline." -- From summary.

Mapping Fate

Author : Alice Wexler
ISBN : 0520207416
Genre : Biography & Autobiography
File Size : 74. 60 MB
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Wexler tells the story of a family at risk for Huntington's disease, a hereditary, incurable, fatal disorder from which her own mother died. This graceful and eloquent account goes beyond the specifics of the disease to explore the dynamics of family secrets, of living at risk, and the drama and limits of biomedical research. Photos.

The Case Against Perfection

Author : Michael J Sandel
ISBN : 9780674043060
Genre : Philosophy
File Size : 48. 39 MB
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The Strongest Boy In The World

Author : Philip Reilly
ISBN : 9780879698010
Genre : Medical
File Size : 83. 42 MB
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Philip R. Reilly is a physician, geneticist, and a lawyer. He is also a storyteller. His new book, The Strongest Boy in the World: How Genetic Information is Reshaping Our Lives,contains twenty engaging stories, each of which offers the reader a delightful excursion that will expand his worldview. As tour guide, Reilly is passionately committed to ensuring that intriguing discoveries lie around every bend in the road. Whether it is speculating on the impact of genetics on the future of sports, the evolutionary origins of humans, the mysteries of genetic diseases, the similarities between dogs and people, the impact of genetic engineering on what we eat, or the ethical dimensions of stem cell research, Reilly offers up spell binding tales. In each of the twenty chapters, he deftly reviews complex scientific and medical information in a manner that offers the reader the facts necessary to debate the value questions.

See The Hope

Author : Rylee Tipton
ISBN : 1522085696
Genre :
File Size : 57. 7 MB
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This book was written by a girl with Angelman syndrome to describe her communication journey. People with Angelman syndrome have complex communication needs. She chronicles the process she went through toward freeing her inner thoughts. Rylee started this book at 9 years old and finished three years later. This book is intended for you to see the hope.


Author : Nigel S. Hey
ISBN : 9781780887845
Genre : Biography & Autobiography
File Size : 20. 79 MB
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Nigel Hey’s sixth book, Wonderment: A Love Affair with Adventure, Writing, Travel, Philosophy, and Family Life, is more than an autobiography about an English-American science writer ­– it is a trip around the world and around the mind. The heart of this fast-paced story lies in its varied, thoughtful, and sometimes hilarious collection of memoirs about writing, printing, publishing, media, Native Americans, the American mountain states, world travel, and amateur theatre. These are linked with the author’s philosophical thoughts and observations on the trials and triumphs of a family life shared between London and New Mexico. Hey considers that his life has been both enriched and at times endangered by an apparently insatiable curiosity that has filled his world with adventures of mind and body. In his boyhood his parents take him to a new home, touching off a semi-nomadic five years that eventually take him to the American West, torn between a love of his native Lancashire and the unknowns of future life. Small-town realities in an all-Mormon community teach him the lessons of being an outsider and awake a spirit of independent thought and action. With his university years complete, he heads for his first fulltime job, in Bermuda, then a second in England. These mark the start of an exhilarating rollercoaster life in which he achieves professional success while fulfilling the responsibilities of parenthood and enduring the heartaches of two failed marriages. Throughout, he lives the life of a genuinely curious man, exploring the vestiges of colonial Spain that survive in the mountains of the American Southwest, driving a tunnel in the remote mountains of Greece, dancing with native Americans, uncovering the history of high-tech Soviet weapon science, exploring his Yorkshire and Lancashire roots, traveling the world. The story is laced with scores of real-life anecdotes as Nigel Hey explores his personal philosophy and tackles the biggest question of all – where does he really belong?

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