the parents guide to down syndrome advice information inspiration and support for raising your child from diagnosis through adulthood

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Down Syndrome Parenting 101

Author : Natalie Hale
ISBN : 160613020X
Genre : Family & Relationships
File Size : 31. 27 MB
Format : PDF
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This is a savvy book for parents, grandparents, teachers, and anyone who shares life with a person with Down syndrome! It's full of uplifting advice and best practices gleaned from the author's personal and professional experiences raising a son, now an adult, and teaching educators and parents how to teach children with Down syndrome to read. The book offers inspired takes on a host of important issues, from learning to recognise and celebrate your child's personality and gifts to finding a great teacher for him, and from insisting your child pull his own weight to giving your child his space as an adult. The author -- equal parts mentor, humorist, enthusiast, and realist -- takes readers by the hand and walks them through the various life stages, experiences, and people they will encounter with their child including: getting to know and fall in love with your child, interacting with medical professionals, literacy, discipline, school, transitioning, and independence. Chapters are short, a plus for busy parents, and can be read individually or sequentially. Throughout, many characters -- the author's son, friends, and students -- appear, serving as anecdotal evidence in support of the author's points and adding to the storytelling effect. As an added bonus, the book includes a Foreword by Martha Beck, parent of a child with Down syndrome and author of the New York Times best-seller, Expecting Adam. Turn to this upbeat book for credible, realistic advice and for a dose of bibliotherapy when you need validation and perspective.

Gifts

Author : Kathryn Lynard Soper
ISBN : 1890627852
Genre : Family & Relationships
File Size : 43. 62 MB
Format : PDF, ePub, Docs
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A collection of personal stories from mothers of children with Down Syndrome.

Supporting Positive Behavior In Children And Teens With Down Syndrome

Author : David Stein, Psy.d.
ISBN : 1606132636
Genre :
File Size : 22. 60 MB
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A child doesn't want to leave the toy store, so he stops and flops. Another bolts across a busy parking lot, turns and smiles at his mom. An eighteen-year-old student bursts into tears when asked to change activities at school. Sound familiar? These and other common behavior issues in children with Down syndrome can quickly become engrained and may even persist into adulthood. No parent wants that to happen, and thankfully, help is available! Dr. David Stein, a psychologist and Co-Director of the Down Syndrome Program at Boston Children's Hospital, shares his approach to behavior management in this new book for parents. Supporting Positive Behavior in Children and Teens with Down Syndrome examines how the brain of a person with Down syndrome works, how those differences impact behavior, and why bad behavior should not be viewed as a willful act. Governed by this new awareness, parents are in a better position to change and manage their child's behavior using these guiding principles: [[Be proactive, not reactive [[Be consistent [[Use visual schedules & Social Stories to direct behavior [[Develop a token reward chart [[Keep gut reactions in check [[Teach siblings to ignore bad behavior [[Learn effective disciplinary techniques [[Know when professional help is needed Some of these parenting concepts are intuitive, others are not, but when they are followed consistently, children and teens with Down syndrome do their best behaviorally and the parent-child relationship remains as positive and loving as it should be.

Gifts 2

Author : Kathryn Lynard Soper
ISBN : 1890627968
Genre : Family & Relationships
File Size : 87. 99 MB
Format : PDF, ePub
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Includes more than seventy inspirational essays from family, friends, teachers, coaches, and medical professionals who recount the gifts--acceptance, courage, friendship, awareness and the joy they receive from knowing and caring about someone with Down Syndrome.

An Uncomplicated Life

Author : Paul Daugherty
ISBN : 9780062359964
Genre : Biography & Autobiography
File Size : 43. 67 MB
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A father’s exhilarating and funny love letter to his daughter with Down syndrome whose vibrant and infectious approach to life has something to teach all of us about how we can better live our own. Jillian Daugherty was born with Down syndrome. The day they brought her home from the hospital, her parents, Paul and Kerry, were flooded with worry and uncertainty, but also overwhelming love, which they channeled to “the job of building the better Jillian.” While their daughter had special needs, they refused to allow her to grow up needy—“Expect, Don’t Accept” became their mantra. Little did they know how ready Jillian was to meet their challenge. Paul tells stories from Jillian’s mischievous childhood and moves to her early adulthood, tracing her journey to find happiness and purpose in her adult life, sharing endearing anecdotes as well as stories about her inspiring triumphs. Having graduated from high school and college, Jillian now works to support herself, and has met the love of her life and her husband-to-be, Ryan. In An Uncomplicated Life, the parent learns as much about life from the child as the child does from the parent. Through her unmitigated love for others, her sparkling charisma, and her boundless capacity for joy, Jillian has inspired those around her to live better and more fully. The day Jillian was born, Paul says, was the last bad day. As he lovingly writes, “Jillian is a soul map of our best intentions”—a model of grace, boundless joy, and love for all of us.

Beautiful Eyes

Author : Paul Austin
ISBN : 039308244X
Genre : Biography & Autobiography
File Size : 74. 99 MB
Format : PDF, Kindle
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Tells the story of a father's journey toward acceptance of his daughter with Down syndrome, chronicling her coming of age while confronting his own limitations as a father.

When Down Syndrome And Autism Intersect

Author : Margaret Froehlke
ISBN : 1606131605
Genre : Family & Relationships
File Size : 70. 81 MB
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While it's well known that the incidence of autism spectrum disorders (ASD) is skyrocketing in the general population, it's less well known that ASD is even more common in people with Down syndrome. When Down Syndrome and Autism Intersect is the first comprehensive guide to look at the dual diagnosis of Down Syndrome and Autism Spectrum Disorder (DS-ASD). Written by parents and professionals, the book discusses best practices for screening, treatment, education, and caretaking. This one-stop resource is for families whose child is already diagnosed, as well as parents who suspect their child has co-existing ASD. Professionals, too, will find information on how to distinguish DS-ASD from a diagnosis of just Down syndrome for instance, what physical and medical issues belong to a Down syndrome-only diagnosis, and what mental and behavioral issues suggest that an ASD also exists. They will also find guidance to help them care for and provide services for children and adults with this dual diagnosis. The editors and chapter authors include seasoned parents, advocates, doctors, dentists, psychologists, behavior analysts, nurses, educators, and financial planners. They share their experiences and expertise on these topics: Diagnosis Emotional Adjustment & Getting Support Genetics Medical & Health Concerns What Autism Looks like in a Child with Down Syndrome When Autism is Suspected in Teens and Adults with DS Oral Health Behavioral Treatments for Sleep Problems Care Coordination Problem Behaviors Educational Programs Working with Minorities Life Planning Parents and professionals, who previously had to piece together information about DS-ASD from sources about each separate condition, can now rely on this groundbreaking book to understand and navigate the complexities and challenges of DS-ASD.

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