the parents guide to down syndrome advice information inspiration and support for raising your child from diagnosis through adulthood

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The Parent S Guide To Down Syndrome

Author : Jen Jacob
ISBN : 9781440592904
Genre : Family & Relationships
File Size : 79. 2 MB
Format : PDF, Kindle
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"A guide for parents whose kid(s) have Down syndrome"--

Down Syndrome Parenting 101

Author : Natalie Hale
ISBN : 160613020X
Genre : Family & Relationships
File Size : 71. 81 MB
Format : PDF
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This is a savvy book for parents, grandparents, teachers, and anyone who shares life with a person with Down syndrome! It's full of uplifting advice and best practices gleaned from the author's personal and professional experiences raising a son, now an adult, and teaching educators and parents how to teach children with Down syndrome to read. The book offers inspired takes on a host of important issues, from learning to recognise and celebrate your child's personality and gifts to finding a great teacher for him, and from insisting your child pull his own weight to giving your child his space as an adult. The author -- equal parts mentor, humorist, enthusiast, and realist -- takes readers by the hand and walks them through the various life stages, experiences, and people they will encounter with their child including: getting to know and fall in love with your child, interacting with medical professionals, literacy, discipline, school, transitioning, and independence. Chapters are short, a plus for busy parents, and can be read individually or sequentially. Throughout, many characters -- the author's son, friends, and students -- appear, serving as anecdotal evidence in support of the author's points and adding to the storytelling effect. As an added bonus, the book includes a Foreword by Martha Beck, parent of a child with Down syndrome and author of the New York Times best-seller, Expecting Adam. Turn to this upbeat book for credible, realistic advice and for a dose of bibliotherapy when you need validation and perspective.

Babies With Down Syndrome

Author : Susan J. Skallerup
ISBN : 1890627550
Genre : Education
File Size : 51. 4 MB
Format : PDF, Kindle
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Offers advice on issues such as prenatal testing, developmental expectations, medical needs, legal help, educational assistance, and familial adjustment.

The Oasis Guide To Asperger Syndrome Completely Revised And Updated

Author : Patricia Romanowski Bashe
ISBN : 9780307558718
Genre : Health & Fitness
File Size : 54. 7 MB
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Asperger Syndrome has become an increasingly common disorder. One in 300 individuals may have AS—exhibiting characteristics such as average to high intelligence, obsessive behavior, intense special interests, and difficulty dealing with everyday social situations—and it is now more prevalent than childhood cancer and Down’s syndrome. As the mother of a boy diagnosed with AS in 1994, Barbara Kirby found scant resources and support. She developed the internationally renowned OASIS (Online Asperger Syndrome Information and Support) Web site in 1995 to help other parents find the information they need. She teamed up with Patricia Romanowski Bashe, now co-owner of OASIS and herself the mother of a son with AS, to write The OASIS Guide to Asperger Syndrome, which has become the standout authority in the field and a must-have for this growing audience. Now Bashe and Kirby have crafted a fully revised edition of this comprehensive resource for parents, teachers, therapists, and anyone who knows or works with someone with AS. In addition to discussing what AS looks like and how parents can guide their unique child through the social, emotional, and intellectual challenges of growing up, this edition includes new developments made in AS research over the past four years, new thinking on diagnosis and evaluation, the latest approaches to medication and social skills development, and tips on navigating the maze of interventions, therapies, and special education. The authors know firsthand the joys and frustrations of raising children with AS, and they share their own experiences as well as those of dozens of parents facing the same issues. Filled with practical information and emotional support, this is the most complete and authoritative guide available. Whether your child has been diagnosed or troubling symptoms are just becoming apparent, this book will point you in the right direction as you face the particular challenges of loving and raising a child with Asperger Syndrome. From the Hardcover edition.

Black Day

Author : Marcus Sikora with Mardra Sikora
ISBN : 9781634134415
Genre : Juvenile Fiction
File Size : 27. 10 MB
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Brad is a paper boy who wants to be a rock star, so when he discovers the band Black Day playing in old Professor Hammers garage, he really wants to join. The bands monsters have a different idea and send him away, ''No humans!''

A Good And Perfect Gift

Author : Amy Julia Becker
ISBN : 9780764209178
Genre : Biography & Autobiography
File Size : 80. 28 MB
Format : PDF, ePub, Mobi
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"A memoir of a young mom finding joy in her daughter with Down Syndrome, as she learns that unmet expectations can bring peace and freedom"--Provided by publisher.

Beautiful Eyes A Father Transformed

Author : Paul Austin
ISBN : 9780393245837
Genre : Family & Relationships
File Size : 21. 1 MB
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Through parenting a child with a disability, a father discovers patience, acceptance, and unconditional love. In 1987, Paul Austin and his wife Sally were newlyweds, excited about their future together and happily anticipating the birth of their first child. He was a medical student and she was a nurse. Everything changed the moment the doctor rushed their infant daughter from the room just after her birth, knowing instantly that something was wrong. Sarah had almond-shaped eyes, a single crease across her palm instead of three, and low-set ears—all of which suggested that the baby had Down syndrome. Beginning on the day Sarah is born and ending when she is a young adult living in a group home, Beautiful Eyes is the story of a father's journey toward acceptance of a child who is different. In a voice that is unflinchingly honest and unerringly compassionate, Austin chronicles his life with his daughter: watching her learn to walk and talk and form her own opinions, making decisions about her future, and navigating cultural assumptions and prejudices—all the while confronting, with poignancy and moving candor, his own limitations as her father. It is Sarah herself, who, in her own coming of age and her own reconciling with her difference, teaches her father to understand her. Time and again, she surprises him: performing Lady Gaga’s "Poker Face" at a talent show; explaining how the word "retarded" is hurtful; reacting to the events of her life with a mixture of love, pain, and humor; and insisting on her own humanity in a world that questions it. As Sarah begins to blossom into herself, her father learns to look past his daughter’s disability and see her as the spirited, warmhearted, and uniquely wise person she is.

Gifts

Author : Kathryn Lynard
ISBN : 1606132768
Genre : Family & Relationships
File Size : 69. 97 MB
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This commemorative 10th anniversary edition of Gifts includes 10 new personal stories, along with "where are they now" updates on many of the children and families featured in the first edition. Gifts is the much-loved collection of over sixty essays written by mothers who share their truths about raising children with Down syndrome. Powerful then and powerful now, it affirms over and over that a life with an extra chromosome is one worth living. The contributors to this collection have diverse personalities and perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatized. Some write about their pregnancy and the early months after giving birth; some reflect on years of experience with their child. The writers? diverse experiences point to a common truth: The life of a child with Down syndrome is something to celebrate. These women have a message to share'not just with other mothers but with genetic counselors, obstetricians, and the rest of us. In particular, Gifts, 10th Anniversary Edition, provides new parents with a source of up-to-date, positive, and realistic insight that is too often missing when they are facing a pre-or postnatal diagnosis of Down syndrome. Also by Kathryn Lynard: Gifts 2: How People with Down Syndrome Enrich the World

Road Map To Holland

Author : Jennifer Graf Groneberg
ISBN : 0451222954
Genre : Family & Relationships
File Size : 34. 20 MB
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In an intimate memoir about life with a Down Syndrome child, the author combines personal reminiscences and reflection with practical advice and insights as she describes the first two years of life with her son Avery, a child whose twin brother did not have the ailment, and her struggle to balance the challenges of raising a child with special needs with her love for her son. Original.

A Parent S Guide To Asperger Syndrome And High Functioning Autism First Edition

Author : Sally Ozonoff
ISBN : 9781606238257
Genre : Psychology
File Size : 44. 98 MB
Format : PDF, ePub, Docs
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Asperger Syndrome and high-functioning autism are detected earlier and more accurately today than ever before. Children and teens with these disorders often stand out for their precocious intelligence and language abilities--yet profound social difficulties can limit every aspect of their lives. This hopeful, compassionate guide shows parents how to work with their child's unique impairments and capabilities to help him or her learn to engage more fully with the world and live as self-sufficiently as possible. From leading experts in the field, the book is packed with practical ideas for helping children relate more comfortably to peers, learn the rules of appropriate behavior, and participate more fully in school and family life. It also explains what scientists currently know about autistic spectrum disorders and how they are diagnosed and treated. Real-life success stories, problem-solving ideas, and matter-of-fact advice on everything from educational placements to career planning make this an indispensable reference that families will turn to again and again.

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