the parents guide to down syndrome advice information inspiration and support for raising your child from diagnosis through adulthood

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The Parent S Guide To Down Syndrome

Author : Jen Jacob
ISBN : 9781440592904
Genre : Family & Relationships
File Size : 31. 74 MB
Format : PDF, Kindle
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"A guide for parents whose kid(s) have Down syndrome"--

Down Syndrome Parenting 101

Author : Natalie Hale
ISBN : 160613020X
Genre : Family & Relationships
File Size : 65. 56 MB
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This is a savvy book for parents, grandparents, teachers, and anyone who shares life with a person with Down syndrome! It's full of uplifting advice and best practices gleaned from the author's personal and professional experiences raising a son, now an adult, and teaching educators and parents how to teach children with Down syndrome to read. The book offers inspired takes on a host of important issues, from learning to recognise and celebrate your child's personality and gifts to finding a great teacher for him, and from insisting your child pull his own weight to giving your child his space as an adult. The author -- equal parts mentor, humorist, enthusiast, and realist -- takes readers by the hand and walks them through the various life stages, experiences, and people they will encounter with their child including: getting to know and fall in love with your child, interacting with medical professionals, literacy, discipline, school, transitioning, and independence. Chapters are short, a plus for busy parents, and can be read individually or sequentially. Throughout, many characters -- the author's son, friends, and students -- appear, serving as anecdotal evidence in support of the author's points and adding to the storytelling effect. As an added bonus, the book includes a Foreword by Martha Beck, parent of a child with Down syndrome and author of the New York Times best-seller, Expecting Adam. Turn to this upbeat book for credible, realistic advice and for a dose of bibliotherapy when you need validation and perspective.

Babies With Down Syndrome

Author : Susan J. Skallerup
ISBN : 1890627550
Genre : Education
File Size : 66. 40 MB
Format : PDF, ePub
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Offers advice on issues such as prenatal testing, developmental expectations, medical needs, legal help, educational assistance, and familial adjustment.

Black Day

Author : Marcus Sikora with Mardra Sikora
ISBN : 9781634134415
Genre : Juvenile Fiction
File Size : 29. 81 MB
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Brad is a paper boy who wants to be a rock star, so when he discovers the band Black Day playing in old Professor Hammers garage, he really wants to join. The bands monsters have a different idea and send him away, ''No humans!''

Road Map To Holland

Author : Jennifer Graf Groneberg
ISBN : 9781440634710
Genre : Family & Relationships
File Size : 88. 32 MB
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An exceptional memoir that provides emotional insight and practical advice. It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast... When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome. Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.

The Oasis Guide To Asperger Syndrome Completely Revised And Updated

Author : Patricia Romanowski Bashe
ISBN : 9780307558718
Genre : Health & Fitness
File Size : 28. 40 MB
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Asperger Syndrome has become an increasingly common disorder. One in 300 individuals may have AS—exhibiting characteristics such as average to high intelligence, obsessive behavior, intense special interests, and difficulty dealing with everyday social situations—and it is now more prevalent than childhood cancer and Down’s syndrome. As the mother of a boy diagnosed with AS in 1994, Barbara Kirby found scant resources and support. She developed the internationally renowned OASIS (Online Asperger Syndrome Information and Support) Web site in 1995 to help other parents find the information they need. She teamed up with Patricia Romanowski Bashe, now co-owner of OASIS and herself the mother of a son with AS, to write The OASIS Guide to Asperger Syndrome, which has become the standout authority in the field and a must-have for this growing audience. Now Bashe and Kirby have crafted a fully revised edition of this comprehensive resource for parents, teachers, therapists, and anyone who knows or works with someone with AS. In addition to discussing what AS looks like and how parents can guide their unique child through the social, emotional, and intellectual challenges of growing up, this edition includes new developments made in AS research over the past four years, new thinking on diagnosis and evaluation, the latest approaches to medication and social skills development, and tips on navigating the maze of interventions, therapies, and special education. The authors know firsthand the joys and frustrations of raising children with AS, and they share their own experiences as well as those of dozens of parents facing the same issues. Filled with practical information and emotional support, this is the most complete and authoritative guide available. Whether your child has been diagnosed or troubling symptoms are just becoming apparent, this book will point you in the right direction as you face the particular challenges of loving and raising a child with Asperger Syndrome. From the Hardcover edition.

Gifts

Author : Kathryn Lynard
ISBN : 1606132768
Genre : Family & Relationships
File Size : 45. 20 MB
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This commemorative 10th anniversary edition of Gifts includes 10 new personal stories, along with "where are they now" updates on many of the children and families featured in the first edition. Gifts is the much-loved collection of over sixty essays written by mothers who share their truths about raising children with Down syndrome. Powerful then and powerful now, it affirms over and over that a life with an extra chromosome is one worth living. The contributors to this collection have diverse personalities and perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatized. Some write about their pregnancy and the early months after giving birth; some reflect on years of experience with their child. The writers? diverse experiences point to a common truth: The life of a child with Down syndrome is something to celebrate. These women have a message to share'not just with other mothers but with genetic counselors, obstetricians, and the rest of us. In particular, Gifts, 10th Anniversary Edition, provides new parents with a source of up-to-date, positive, and realistic insight that is too often missing when they are facing a pre-or postnatal diagnosis of Down syndrome. Also by Kathryn Lynard: Gifts 2: How People with Down Syndrome Enrich the World

A Parent S Guide To Asperger Syndrome And High Functioning Autism First Edition

Author : Sally Ozonoff
ISBN : 9781606238257
Genre : Psychology
File Size : 87. 26 MB
Format : PDF
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Asperger Syndrome and high-functioning autism are detected earlier and more accurately today than ever before. Children and teens with these disorders often stand out for their precocious intelligence and language abilities--yet profound social difficulties can limit every aspect of their lives. This hopeful, compassionate guide shows parents how to work with their child's unique impairments and capabilities to help him or her learn to engage more fully with the world and live as self-sufficiently as possible. From leading experts in the field, the book is packed with practical ideas for helping children relate more comfortably to peers, learn the rules of appropriate behavior, and participate more fully in school and family life. It also explains what scientists currently know about autistic spectrum disorders and how they are diagnosed and treated. Real-life success stories, problem-solving ideas, and matter-of-fact advice on everything from educational placements to career planning make this an indispensable reference that families will turn to again and again.

An Uncomplicated Life

Author : Paul Daugherty
ISBN : 9780062359964
Genre : Biography & Autobiography
File Size : 63. 52 MB
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A father’s exhilarating and funny love letter to his daughter with Down syndrome whose vibrant and infectious approach to life has something to teach all of us about how we can better live our own. Jillian Daugherty was born with Down syndrome. The day they brought her home from the hospital, her parents, Paul and Kerry, were flooded with worry and uncertainty, but also overwhelming love, which they channeled to “the job of building the better Jillian.” While their daughter had special needs, they refused to allow her to grow up needy—“Expect, Don’t Accept” became their mantra. Little did they know how ready Jillian was to meet their challenge. Paul tells stories from Jillian’s mischievous childhood and moves to her early adulthood, tracing her journey to find happiness and purpose in her adult life, sharing endearing anecdotes as well as stories about her inspiring triumphs. Having graduated from high school and college, Jillian now works to support herself, and has met the love of her life and her husband-to-be, Ryan. In An Uncomplicated Life, the parent learns as much about life from the child as the child does from the parent. Through her unmitigated love for others, her sparkling charisma, and her boundless capacity for joy, Jillian has inspired those around her to live better and more fully. The day Jillian was born, Paul says, was the last bad day. As he lovingly writes, “Jillian is a soul map of our best intentions”—a model of grace, boundless joy, and love for all of us.

Gifts 2

Author : Kathryn Lynard Soper
ISBN : 1890627968
Genre : Family & Relationships
File Size : 70. 73 MB
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Includes more than seventy inspirational essays from family, friends, teachers, coaches, and medical professionals who recount the gifts--acceptance, courage, friendship, awareness and the joy they receive from knowing and caring about someone with Down Syndrome.

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