the sea is wide a memoir of caregiving

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The Sea Is Wide

Author : Rundy Purdy
ISBN : 0986446904
Genre : Biography & Autobiography
File Size : 90. 20 MB
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When Rundy Purdy was twenty-four he began caring for his grandfather who was sick with Alzheimer's. This started a three year battle against inevitable decline, a journey across confused days and long nights. With compassion, hope, and a strong dose of gritty realism, The Sea is Wide: A Memoir of Caregiving tells the story of how a grandfather and his grandson crossed the wide sea of Alzheimer's. It is a tale of losses, but even more of things found in spite of what is lost. It is about giving bedtime stories, hugs, and a lot of coffee. It is a story of laughter even in the presence of sadness. The sea of Alzheimer's is wide, but it can be crossed. In writing that is by turns uplifting and poignant, Rundy shares his journey of perseverance and love. "I laughed and cried my way through [...] it echoed things I went through with my mother and her dementia." - Alice Janice, Caregiver

Nursing Home Federal Requirements

Author : James E. Allen, PhD, MSPH, NHA, IP
ISBN : 0826107923
Genre : Medical
File Size : 77. 32 MB
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"[The book] lists all the federal requirements that are evaluated by state surveyors during the annual survey visit to nursing homes and for complaint visits. The exhibit section contains forms used by surveyors to gather data during the survey visit. Visually, the format makes the regulations easy to read. If nursing home staff used the book to prepare for a survey, they would be well prepared." Marcia Flesner, PhD, RN, MHCA University of Missouri-Columbia From Doody's Review The Federal government, together with more than 50 advocacy groups, has spent the past 40 years writing and refining the rules and guidelines in this manual. This book presents the latest federal guidelines and protocols used by federal surveyors in certifying facilities for participation in Medicare and Medicaid funding. It is an essential resource for long-term care facilities to have on hand to be ready for a survey at any time. It provides information straight from CMS's Internet-Only Manual-in print and at your fingertips for easy access. Divided into four accessible and user-friendly parts, this manual includes: Federal requirements and interpretive guidelines Rules for conducting the survey Summary of the requirements for long-term care facilities and surveyors CMS forms commonly used by surveyors This newly updated and revised edition spans every aspect and service of a nursing home and represents the latest requirements to ensure that outstanding quality assurance and risk management programs are in place. New to This Edition: Section on how to use manual Summarization of federal requirements Updated definitions of Medicare and Medicaid Compliance requirements with Title VI of the Civil Rights Act of 1964 SNF/Hospice requirements when SNF serves hospice patients SNF-based home health agencies Life safety code requirements Changes in SNF provider status Surveyor qualifications standards Management of complaints and incidents New medical director guidelines

Memory S Last Breath

Author : Gerda Saunders
ISBN : 9780316502634
Genre : Biography & Autobiography
File Size : 38. 78 MB
Format : PDF, ePub
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"[A] courageous and singular book."---Andrew Solomon In the tradition of Brain on Fire and When Breath Becomes Air, Gerda Saunders' Memory's Last Breath is an unsparing, beautifully written memoir--a true-life Still Alice that captures Saunders' experience as a fiercely intellectual person living with the knowledge that her brain is betraying her. Saunders' book is uncharted territory in the writing on dementia, a diagnosis one in nine Americans will receive. Based on the "field notes" she keeps in her journal, Memory's Last Breath is Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders nonetheless embarks on a personal investigation of the brain and its mysteries, examining science and literature, and immersing herself in vivid memories of her childhood in South Africa. Written in a distinctive voice without a trace of self-pity, Memory's Last Breath is a remarkable, aphorism-free contribution to the literature of dementia--and an eye-opening personal memoir that will grip all adventurous readers.

A Bittersweet Season

Author : Jane Gross
ISBN : 9780307472403
Genre : Family & Relationships
File Size : 46. 33 MB
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In telling the story of her own struggle to learn how to care for her aging and ailing mother, a journalist offers helpful insights and advice to other caregivers who feel overwhelmed. Reprint.

Staying Afloat In A Sea Of Forgetfulness

Author : Gary Joseph LeBlanc
ISBN : 1462877079
Genre : Self-Help
File Size : 62. 94 MB
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When my father was first diagnosed with Alzheimer’s, I read and researched everything I could get my hands on about the disease. Right off the bat I could tell if it was written by a physician, pharmaceutical company or even a nursing home. When caregivers are looking for help, the last thing they need is medical text so complex they already forgot what they read by the time it’s laid back down. This is what got me started on writing about common sense caregiving, which turned into a weekly column and now into this book. My goal is to make this book as “caregiver friendly” as possible. Sharing my triumphs and hardships from my plus three-thousand day campaign in dealing with the disease of Alzheimer’s and the world of memory-impairment. Gary Joseph LeBlanc is a columnist, speaker and book dealer from Spring Hill, Florida. He was the primary caregiver of his beloved father stricken with Alzheimer’s disease for nearly the past decade. LeBlanc’s weekly column appears in the Hernando Today, a Tampa Tribune Publication and other health publications. His writings offer insight and hope through his own journey of caregiving, dealing with the memory-impaired, given in a caregiver friendly manner.

Bettyville

Author : George Hodgman
ISBN : 9780698158450
Genre : Biography & Autobiography
File Size : 67. 17 MB
Format : PDF
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NEW YORK TIMES BESTSELLER FINALIST FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD “A beautifully crafted memoir, rich with humor and wisdom.” —Will Schwalbe, author of The End of Your Life Book Club “The idea of a cultured gay man leaving New York City to care for his aging mother in Paris, Missouri, is already funny, and George Hodgman reaps that humor with great charm. But then he plunges deep, examining the warm yet fraught relationship between mother and son with profound insight and understanding.” —Alison Bechdel, author of Fun Home When George Hodgman leaves Manhattan for his hometown of Paris, Missouri, he finds himself—an unlikely caretaker and near-lethal cook—in a head-on collision with his aging mother, Betty, a woman of wit and will. Will George lure her into assisted living? When hell freezes over. He can’t bring himself to force her from the home both treasure—the place where his father’s voice lingers, the scene of shared jokes, skirmishes, and, behind the dusty antiques, a rarely acknowledged conflict: Betty, who speaks her mind but cannot quite reveal her heart, has never really accepted the fact that her son is gay. As these two unforgettable characters try to bring their different worlds together, Hodgman reveals the challenges of Betty’s life and his own struggle for self-respect, moving readers from their small town—crumbling but still colorful—to the star-studded corridors of Vanity Fair. Evocative of The End of Your Life Book Club and The Tender Bar, Hodgman’s New York Times bestselling debut is both an indelible portrait of a family and an exquisitely told tale of a prodigal son’s return. From the Hardcover edition.

Calmer Waters

Author : Barbara Cohn
ISBN : 1681570149
Genre : Health & Fitness
File Size : 48. 39 MB
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After spending a decade caring for her husband who died from younger-onset Alzheimers disease, Barbra Cohn offers a spiritual and holistic guide to help caregivers feel happier and healthier, have more energy and time for themselves, sleep better, feel more relaxed and confident, and experience inner peace, despite the obstacles they face. With pathos, humor and compassion, Calmer Waters includes the authors compelling life story, inspirational essays and rituals from spiritual leaders, stories from family caregivers and twenty healing modalities from renowned experts that can be practically incorporated into a daily regimen. An added bonus is that both care partners the caregiver and memory-impaired individualcan use most of the healing modalities, allowing for a stronger connection between the two. Riveting personal accounts of the journeys that caregivers embarked on with their loved ones illustrate the challenging medical, financial, emotional and social roadblocks that accompany coping with Alzheimers and Dementia. A rare blend of storytelling and practical with spiritual advice, this book offers an uplifting account of the strength of the human spirit, and a testament to the love and dedication of the 15 million Americans caring for a memory-impaired relative or friend.

Sea Of Rust

Author : C. Robert Cargill
ISBN : 9780062405845
Genre : Fiction
File Size : 37. 73 MB
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A scavenger robot wanders in the wasteland created by a war that has destroyed humanity in this evocative post-apocalyptic "robot western" from the critically acclaimed author, screenwriter, and noted film critic. It’s been thirty years since the apocalypse and fifteen years since the murder of the last human being at the hands of robots. Humankind is extinct. Every man, woman, and child has been liquidated by a global uprising devised by the very machines humans designed and built to serve them. Most of the world is controlled by an OWI—One World Intelligence—the shared consciousness of millions of robots, uploaded into one huge mainframe brain. But not all robots are willing to cede their individuality—their personality—for the sake of a greater, stronger, higher power. These intrepid resisters are outcasts; solo machines wandering among various underground outposts who have formed into an unruly civilization of rogue AIs in the wasteland that was once our world. One of these resisters is Brittle, a scavenger robot trying to keep a deteriorating mind and body functional in a world that has lost all meaning. Although unable to experience emotions like a human, Brittle is haunted by the terrible crimes the robot population perpetrated on humanity. As Brittle roams the Sea of Rust, a large swath of territory that was once the Midwest, the loner robot slowly comes to terms with horrifyingly raw and vivid memories—and nearly unbearable guilt. Sea of Rust is both a harsh story of survival and an optimistic adventure. A vividly imagined portrayal of ultimate destruction and desperate tenacity, it boldly imagines a future in which no hope remains, yet where a humanlike AI strives to find purpose among the ruins.

The Revised Fundamentals Of Caregiving

Author : Jonathan Evison
ISBN : 9781616203177
Genre : Fiction
File Size : 33. 12 MB
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In The Revised Fundamentals of Caregiving (releasing June 24, 2016 as a Netflix Original Film titled The Fundamentals of Caring, starring Paul Rudd and Selena Gomez), Jonathan Evison, author of the new novel This Is Your Life, Harriet Chance! and the New York Times bestseller West of Here, has crafted a novel of the heart, a story of unlikely heroes in a grand American landscape. For Ben Benjamin, all has been lost--his wife, his family, his home, his livelihood. Hoping to find a new direction, he enrolls in a night class called The Fundamentals of Caregiving, where he will learn to take care of people with disabilities. He is instructed about professionalism, about how to keep an emotional distance between client and provider, and about the art of inserting catheters while avoiding liability. But when Ben is assigned his first client--a tyrannical nineteen-year-old boy named Trevor, who is in the advanced stages of Duchenne muscular dystrophy--he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world. Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens as they embark on a road trip to visit Trev’s ailing father--a journey rerouted by a series of bizarre roadside attractions that propel them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life. Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life’s terrible surprises as well as what it takes to truly care for another human being.

An Uncertain Inheritance

Author : Nell Casey
ISBN : 9780061843129
Genre : Family & Relationships
File Size : 39. 78 MB
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In this eloquent collection of essays—from the editor of the national bestseller Unholy Ghost: Writers on Depression—contributors reveal their experiences in caring for family through illness and death Today, thirty million people look after frail family members in their own homes. This number will increase drastically over the next decade—as baby boomers tiptoe toward old age; as soldiers return home from war wounded, mentally and physically; as a growing number of Americans find themselves caught between the needs of elderly parents and young children; as medical advances extend lives and health insurance fails to cover them. This compelling book offers both literary solace and guidance to the people who find themselves witness to—and participants in—the fading lives of their intimates. Some of the country's most accomplished writers offer frank insights and revelations about this complex relationship. Julia Glass describes the tension between giving care—to her two young sons—and needing care after being diagnosed with breast cancer; Ann Harleman explores her decision to place her husband in an institution; Sam Lipsyte alternates between dark humor and profound understanding in telling the story of his mother's battle with cancer; Ann Hood wishes she'd had more time as a caregiver, to prepare herself for the loss of her daughter; Andrew Solomon examines the humbling experience of returning as an adult to be cared for by his father; cartoonist Stan Mack offers an illustrated piece about the humor and hell of making his way through the medical bureaucracy alongside his partner, Janet; Julia Alvarez writes about the competition between her and her three sisters to be the best daughter as they tend to their ailing parents. An Uncertain Inheritance examines the caregiving relationship from every angle—children caring for parents; parents caring for children; sib-lings, spouses, and close friends, all looking after one another—to reveal the pain, intimacy, and grace that take place in this meaningful connection.

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